CANADIANS: This is for any and all Canadians... - PSP Association

PSP Association

9,665 members11,572 posts

CANADIANS

MJ-Mark profile image
11 Replies

This is for any and all Canadians ..

I am working very hard to get us our own psp site. I can hardly wait!! I think we dropped the ball and alot of us were feeling (and still are) left to help ourselves.

I will be going to a meeting in Markham soon (VP of education for psp in USA) will be helping!

In the meantime, PSP USA (curepsp.org) has listed me as a peer supporter. in addition, has supplied me with a TON of information that I would be happy to mail to all who would like it.

Please do not hesitate to ask, I would love to help.

MJ

Written by
MJ-Mark profile image
MJ-Mark
To view profiles and participate in discussions please or .
11 Replies
Macd profile image
Macd

From Victoria BC my wife June is in her 7th year since it was determined to be PSP several years ago we joined the English society and have found it to be very helpful. You can depend on our support for a Canadian arm of PSP Society my email address is hunma2002@yahoo.ca and I have the contact emails of several other BC persons that have PSP. Let me know if I can be of assistance.

Richard Mac Donald, P. Eng.

MJ-Mark profile image
MJ-Mark in reply toMacd

Hi there, thanks for replying. I hope all Canadians reply so that I can show them there is a great need! I will put your email in my address book. Also, if you would like, i can send you all the psp info I have and a copy on video of the conference from Los Angeles!! just let me know..

Am so excited to do this for everyone who needs it in Canada!!

Happy Canada Day!!

MJ

riosenior profile image
riosenior

Mark

Are you aware that research & clinical trials associated with PSP in Canada are supported by the Parkinson Society of Canada.

Have you had any discussions with them ? Perhaps there could be some advantages of your proposed site also being "under the Parkinsons umbrella"

If not the web address is as follows (copy it into IE or similar)

parkinson.ca/site/c.kgLNIWO...

I am in England and my wife has PSP. Our youngest son lives in Saskatchewan and also has some contacts in curepsp. I will endeavour to get you their contact details.

Good luck

Roger

MJ-Mark profile image
MJ-Mark in reply toriosenior

Hi Roger

I sure am aware that Allon is Canadian!! I wish things could move quicker though for my Dad. I understand why it takes so long however it is frustrating.

Any help or contacts would be appreciated. I am going to get this done,

Thank you!

MJ

riosenior profile image
riosenior in reply toMJ-Mark

Excuse my ignorance but who or what is Allon?

MJ-Mark profile image
MJ-Mark in reply toriosenior

Allon is the name of the drug company that produces Davunetide. Its in BC.

riosenior profile image
riosenior in reply toMJ-Mark

Mark

I assume you have been on the uk website at pspeur.org

If you want some contacts at PSP Association

the CEO is Fergus Logan and he can be contacted at Fergus.Logan@pspeur.org and his phone is 011441327322410

I am sure PSPA will be willing to advise & support

you

Roger

riosenior profile image
riosenior in reply toMJ-Mark

Mark

My son has been in touch with his contact at curepsp and he is quite happy for you to contact him directly.

He is the Vice Chair of the Board of Directors at CurePSP

If you advise me of your email address I will forward his contact details to you.

Roger

LyndaEllis profile image
LyndaEllis

I am a Canadian! My mailing address is; Box 887, Rossland,B.C., V0G 1Y0.

MJ-Mark profile image
MJ-Mark

Lynda hi there!

Would you like me to mail you some information and a psp video? Let me know....

I hope all Canadians check in here so I can show them the real need for support!!

MJ

MJ-Mark profile image
MJ-Mark

Linda, my email address is taxvictim@rogers.com

I would like to purolate your info to you but they will not deliver to a PO Box. If you could sent me your physical address, you can get this quicker.

Thanks

Mj

Not what you're looking for?

You may also like...

PSP Conference - Attending Tomorrow

I'm attending the PSP Conference here in Raleigh, NC. It's the national PSP USA conference and...
Cuttercat profile image

My wife has PSP and there may not be a cure for PSP, but there is a drug that slows the progression

My Name is Andy and my wife has PSP. We belong to a user group in Phoenix, AZ USA, My wife is a...
andyniem profile image

Mom with PSP in PA & helpful book

Hi All I have been reading your posts for awhile and they have been so helpful. We are in the US...
EmilyRD profile image

Update to my post on the U-Step 2 Walker, the best walker for those with PSP

There is an attachment known as the Cueing Module that is made for the U-Step 2 Walker. This module...
grafixapn profile image

Update on Prof Morris appointment

I apologise for not writing sooner. We've had a mad week. Phil had his appointment with Prof Morris...
Karibu profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.