I am working very hard to get us our own psp site. I can hardly wait!! I think we dropped the ball and alot of us were feeling (and still are) left to help ourselves.
I will be going to a meeting in Markham soon (VP of education for psp in USA) will be helping!
In the meantime, PSP USA (curepsp.org) has listed me as a peer supporter. in addition, has supplied me with a TON of information that I would be happy to mail to all who would like it.
Please do not hesitate to ask, I would love to help.
MJ
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MJ-Mark
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From Victoria BC my wife June is in her 7th year since it was determined to be PSP several years ago we joined the English society and have found it to be very helpful. You can depend on our support for a Canadian arm of PSP Society my email address is hunma2002@yahoo.ca and I have the contact emails of several other BC persons that have PSP. Let me know if I can be of assistance.
Hi there, thanks for replying. I hope all Canadians reply so that I can show them there is a great need! I will put your email in my address book. Also, if you would like, i can send you all the psp info I have and a copy on video of the conference from Los Angeles!! just let me know..
Am so excited to do this for everyone who needs it in Canada!!
I am in England and my wife has PSP. Our youngest son lives in Saskatchewan and also has some contacts in curepsp. I will endeavour to get you their contact details.
I sure am aware that Allon is Canadian!! I wish things could move quicker though for my Dad. I understand why it takes so long however it is frustrating.
Any help or contacts would be appreciated. I am going to get this done,
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