A really unfortunate thing happened today . . .we're traveling (which is how I saw Anne!) and while my husband was having a private conversation with a family member about his worst fears about CBD, our 9-year-old son came inside and heard the whole thing from the other room.
It was bad--the fears about the possible five-year life expectancy, about the terror about losing control of movements and knowing you were powerless--all of this my son heard. All he knew so far was that Dad has a form of Parkinson's, and we're getting tests and trying medicines to see what kind it is. You can't see many of the symptoms yet.
I did my best damage control as our son had a meltdown at bedtime about his fears about his dad dying, or being trapped and unable to move, etc. At least he poured it all out. I flailed around with my best shot: that we don't know yet that it's for sure CBD, and that not everyone gets the worst kind, that many live way longer, that even if he were the one to get the worst kind there are medicines that take away the terror. He asked what would happen to us if he died, and I assured him we had plans and he'd be okay. Ahhhh!
This is way earlier than we wanted them to have the term "CBD" or that horrible number of 5-6 years, etc.
What advice do you all have? Helpful things to say? I'm feeling gutted.