Just started the first week of a Carers Course, arranged by the Hospice where my husband has started to go on a Tuesday for rest bite.
Really informative.........'moving and handling' this week. made me realise the sort of equipment that I will have to have in the house soon.
My husbands' illness, CBD, has progressed quite quickly in the last six months and I have been wondering how I was going to manage things in the near future. being on the course today and having so much feed back from other carers has helped me enormously to sort things in my head.
I even met a carer whose wife has PSP, so we had a lot of things to talk about.
The other carers there today had loved ones with all sorts of illnesses and all were such lovely people.
My husband had a really bad morning. There were a lot of tears and he was very distressed. When I asked him why he was crying he said that he knows now that he isn't ever going to get better and he didn't see the point in carrying on?
It was a very sorrowful moment. he had never said anything like this before and I told him that we needed to think of all the good things that we could and would do.
"Like what?"He asked me and I told him that tomorrow it was going to be a sunny day so we could go to the coast and breath the air and have the sun on our faces..............after a while he was calmer and thought about what I had said and smiled a bit,then asked "could we have fish and chips whilst we are there?"
Thank goodness it is sometimes just the simple pleasures that bring the most joy!............