Just started the first week of a Carers Course, arranged by the Hospice where my husband has started to go on a Tuesday for rest bite.
Really informative.........'moving and handling' this week. made me realise the sort of equipment that I will have to have in the house soon.
My husbands' illness, CBD, has progressed quite quickly in the last six months and I have been wondering how I was going to manage things in the near future. being on the course today and having so much feed back from other carers has helped me enormously to sort things in my head.
I even met a carer whose wife has PSP, so we had a lot of things to talk about.
The other carers there today had loved ones with all sorts of illnesses and all were such lovely people.
My husband had a really bad morning. There were a lot of tears and he was very distressed. When I asked him why he was crying he said that he knows now that he isn't ever going to get better and he didn't see the point in carrying on?
It was a very sorrowful moment. he had never said anything like this before and I told him that we needed to think of all the good things that we could and would do.
"Like what?"He asked me and I told him that tomorrow it was going to be a sunny day so we could go to the coast and breath the air and have the sun on our faces..............after a while he was calmer and thought about what I had said and smiled a bit,then asked "could we have fish and chips whilst we are there?"
Thank goodness it is sometimes just the simple pleasures that bring the most joy!............
D x
Written by
DenB
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Well, I enjoyed the talking and listening to what other carers have to cope with etc and found everything that I heard from the nurses and and the person taking the talk and demonstration today very interesting and helpful.
Next week is about finances...so that should be equally interesting.......I only found out a month ago that my husband was entitled to free prescriptions! I had previously paid annually.
I would thoroughly recommend the course...and that is after the first week,Caring for carers sounds the same.
Hi DenB, I have signed up for one in June. This is run by Social Services, I think it's more about the emotionally side. I am looking forward to it, nice to meet some fellow mugs(!!!!!!!!). ((Sorry, bad night!)). I know I need some support in this field, up half the night, ended up screaming at him, because he wouldn't turn the light off, now I have just picked him up off the floor, patience has certainly left this house. Not that there was much beforehand!!!
I end up feeling soooooo guilty that I haven't kept my patience even though I am usually a very patient person. I think that it is definitely worse when the tiredness sets in!
let's hope that on the course there will be a week (there will be 6 weeks) that might address the subject!!!!!
I AM SO SORRY THA T YOU ARE LOIGN IT WITH YOUR PARTNER
WHA TWILL AHPPEN NEXT?\R EYOSUINFU THINKING O F ANY RESPIT E CARE FOR YOU BOTH
OR FOR YOUR SE;LF
MY PARTNER SAYS HE DOESNT NEE D IT BUT HSI TEMPER WITH ME HAS GOT AMAZINGLY BAD AND HE IS VERBALLY V ABUSIVE TOWARDS ME SO I AM BOOKING MJYSLELF SOME ITME OTU AT THE END OF THIS MONTH (HOPEFULLY )
I am finding the carers course really good.I have met other lovely carers and exchanging lots of useful information ie,phone numbers for mobile chiropodists,hairdressers, what equipment for moving etc works best in different situations.There has been emotional support and just finding out about how other people are coping.
It feels very useful to be able to pass on any knowledge or practical advise to help others. I have even managed to pass on some advise that I have learnt on this site!
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