Changed from sinemet.

[nannygoon]

Since Rose has big difficulty with swallow now nursing home have changed her sinemet tablet to Madepar liquid it is almost the same as sinemet and since the change over she has been very bright and has even managed a few words!!! Has any one else experienced this?

[Steve666]

Hiya , my wife was diagnosed with psp a year ago and has been on the maximum dose of madopar since she was diagnosed and up to now there has been no change in her..she can walk with the aid of a stroller and is still very independent. Good luck

[nannygoon in reply to Steve666]

Think Rose my sister has had it for about 4/5 years totally dependant now can't walk/talk feed herself think probably final stage, when she first started sinemet there was a remarkable difference until now and the last week or so there has been these changes that I mentioned! Just hope I am not being to hopefully as I know she won't get better. Thank you for your reply good luck.

[easterncedar]

Oh my goodness, Nannygoon, what a turnaround. Psp is the most unpredictable disease I know of. Yesterday my own sweetheart, after several weeks of steady decline, greeted me brightly at the door, and carried on conversation steadily through the evening. We went out for pizza and a movie. He was very unsteady on his feet, but used just me and a cane to get about. The ready access to his own vocabulary was a rare event, and I decided to relax and enjoy it. There has been no change in his meds, but he had PT in the morning. Usually that wipes him out, but he was energized, stayed awake through the movie (Mr. Turner, great movie, but not full of excitement.) and the drive home.

I hope you and your sister also have a good reprieve. Hold on. Love, Easterncedar

[nannygoon in reply to easterncedar]

Thank you, it is amazing my Niece was visiting her today and sent me a picture on Facebook she is smiling, and was talking a little to!.Also the staff said she had shouted an answer out while watching a quiz programme! I am just going to enjoy it for the moment, best wishes to you and your sweetheart.xxx

[easterncedar in reply to nannygoon]

Life is a strange business, that's for sure! I do wish you and your sister and the rest of the family all the best. Love and peace, Easterncedar