Some time ago I had a carers assessment and my husband was assessed for his needs and we undertook a financial assessment. The outcome was I was granted 3. Hours free flexible sitting arrangement per week. Today the social worker rang to tell me that we will no longer be on the social services records / books as nothing else is needed .
When and if the situation changes I need to ring the social services and be assessed etc all over again
I am amazed , as psp is progressive and terminal I presumed that was our social worker and contact unti the end . There is change already since the first assessments , it's ongoing. It's just at present I do everything for my husband and call on family when I need help. I toilet, wash, shower dress my husband, he can not get in or out of be d or chair or a car. His food is cut up. In fact the only thing I don't do at moment is feed him. How can they make you go through the telephone assessment channels and start from scratch each time???? At the last telephone assessment after telling the m everything I did for him I was asked if he went out on the bus on his own.
Has anybody else had this experience ???? I'd be interested to hear.thanks