Good Morning,
My dad was diagnosed with CBD in May 2021 (symptoms began way before this).
My mom is his full time carer. I help on my non working days.
We receive AM & PM (wake up & put to bed calls) from a local care agency, which is a god send for my mom.
My dad is at the stage where:
he is completely wheelchair bound.
He needs a standing frame to move him from chair to wheelchair & bed etc.
He requires a chairlift to get him upstairs.
He's upper body strength is becoming weaker. If he falls maneuvering he used to be able to pull himself up to lean against the wall, this is no longer.
He requires continence pads.
He occasionally chokes on food.
His cognitive state is declining rapidly. Short term memory is non existence. He is now struggling with aspects of long term memory too.
He constantly needs to go visit the bathroom. He has the urge to pass urine or open his bowels.
I spoke to his neurology nurse about CHC funding and she said he wouldn't qualify as he wouldn't meet the criteria?
I am not familiar with the process and would love to hear other peoples thoughts and ideas please.
We are at the stage now where my mom is completely exhausted. I feel we need to act now as things are changing so quickly.
Thank you in advance.