TOM RIP

Hi everyone,

Lost my uncle on 1st of September to PSP just has the morning was starting to begin, I was his carer and i miss him so so much every single day, not a day has gone by that i haven't cried for him, he was a huge part of my life like a father to me. i know he is at peace now and free from that horrible disease, as my life goes on without him he will always be with me in my heart. I love you Tom xx

17 Replies

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  • Hi Trice268, I'm so sorry your dear uncle has left you but he is now at peace and free from this horrible disease. You will think of him every day for a long time and when the pain eases something will happen and you will think, Oh I must tell Tom that, only to remember he isn't here any more and the tears will start again. I'm sure Tom would want you to live your life to the full now after all you did for him. PSP has taken him, I hope you can soon start doing all those things you would have done had PSP not entered your lives.

    You are in my thoughts and prayers.

    Nanna B

  • hi trace

    i am so sorry your uncle has died from this PSPbut try and be strong

    ther e willeb a big hole in your life now but you hav e to look after yourself and your family

    lol and hug sand xxxx at this sad time for hyou

    jilll

    psp suffferer in the UK

  • Hi, really sorry to hear about the death of your uncle. My thoughts are with you at this trying time. I think this is the biggest hurdle that "good olde PSP" throws at us. Learning to live without our loved one. You and your uncle got over the rest and you WILL get over this one. Keep thinking about the love you had for Tom and he will help you over!

    Lots of love

    Heady

  • Sorry for your loss

  • Keep your head up and a smile on your face

  • Hello Tom ,

    I too lost some one in my case my brother this August. Like you not a day goes by that he isn't thought about and a tear is shed. I have looked at all his photographs over many years. He was 65 when he died. It was a shock to see how long he had battled with psp and how bravely. Some very kind words were left when I posted his death that my brother has earned the right to have the best place in the house and so has your uncle.

    Take care of yourself

    Love pollyannajo

  • Trice, I feel your grief having lost my dear wife in May this year. Yesterday would have been our 25th anniversary. Hang in there and please continue on this site. You and I can be a help and support to those still fighting PSP. Jimbo

  • HI JI M

    SORRY IT WOUDL HA VE BEEN YOU R 25 TH ANNIVERSARY =- WHAT CNA I SAY TO YOU TO EASE THE PAIN OTHER THAN THAT I THINK YOU ARE V BRAVE TO BE STILL ON THE SITE HELPIGEN OTHER S WITH THSI PSP

    I AM SITLL FIGHTING (WITH TRUE YORKSHIRE GRIT I THINK )DESPITE MY DAD 'S DYIING ON 13 SEPTEMBER (ATAGE 92 ! )AT LEASLT I DO NOT HAVE TO BEAT HIM NOW DO I ?

    LOL JILL

    HUGS AND XX ODT YOU AND YOUR FAMILY

  • Sorry for your loss but better he go first than you. Stay strong, I know you are. Jimbo

  • I am so sorry for your loss. Thinking about you,

    Jill

  • Hi, I am so sorry for your loss and having lost my husband to PSP last December I know how you miss your loved one everyday and losing them does leave a big hole in your life but I am sure your Uncle knew how well you cared for him and would want you to look after yourself now. Best Wishes and thinking of you.

  • Hello Trice -

    Thank you for sharing with us - I hope you are beginning to lose the hurting feeling. The old cliche - time heals - it took me a year before life seemed "normal" again, but know that we are thinking of you.

    Mo

  • Thinking of you and wishing you peace. So sorry for your loss. My husband suffers from CBD and it is painful to watch it progress so fast. Peace from the USA, New Mexico

  • SORRY JOANANDBEAR

    ABOUT YOUR HUSBAND WIYH CBD - IT CAN BE V QU8CK TO PROGRESS I KNOW

    BUT HANG ON IN THERE YOU ARE DOING A GREAT JOB AND STAY ON THSI STIE PLZ?

    LOL JILLL

    PSP PERSON IN UK

    HGUS AND XXX TO YOU AND YOUR S

  • Thanks, Jill. At least we have an excellent doctor who is firm and honest.

  • I used to get e-mails from healthunlocked. what happened to the e-mails?

  • I used to get e-mails from healthunlocked. what happened to the e-mails?

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