Can't let go: We are now entering day 4, St... - PSP Association

PSP Association

9,663 members11,572 posts

Can't let go

Andyclairea1 profile image
10 Replies

We are now entering day 4, St Patrick's day in the UK and some how dad is still hanging on in. I have no idea how!!!! How much longer can this go on? I've told dad I will take care of mam and my brother and I will always be there for each other. My husband has told him he will always look after me. It's almost as if he's waiting for something but I don't know what. His eyes still respond a little and when I suggest he closes them so they don't get sore (no blink) he musters up the strength and closes them. Wish I could understand more I'm desperately heart broken but want him at peace, it's the least he deserves on this evil journey!!!!! My love to all, Andrea xxx

Written by
Andyclairea1 profile image
Andyclairea1
To view profiles and participate in discussions please or .
10 Replies
NannaB profile image
NannaB

Oh Andrea, It must be heartbreaking for all of you. Why do some leave us suddenly but others hang on like your dear dad? Last year a friend was in a similar situation to you, waiting for her husband to leave her (cancer). She very calmly told me when she expected him to go, 7 days after he last took liquid. Her husband was a hospital consultant and had told her he could last 7 weeks without food, 7 days without water and 7 minutes without air. He did leave when expected with all the family around him.

I pray for all your sakes,especially your dad's, that he has a very peaceful departing very soon.

With my love to you all.

X

Andyclairea1 profile image
Andyclairea1 in reply toNannaB

This is informative many thanks for your kind words xxx

abirke profile image
abirke

/well didn't we conclude that he was a fighter....keep your strength up girl...

Peace and strength to you

AVB

Nanny857 profile image
Nanny857

Andrea, keeping you and your family in my thoughts and prayers and that your dad's journey's end is peaceful, then he will be set free from this awful illness.

Lots of love

Nanny857xx

PUTLAND profile image
PUTLAND

Andrea, my thoughts are with you and your family. Such a dreadful disease. Take care xxxx

abirke profile image
abirke

How's dad.....How's you?

Andyclairea1 profile image
Andyclairea1 in reply toabirke

Hi he continues to hold on day 5 of no food or fluid as. The palliative care team have now set up a driver with sedative and pain killer, as his breathing is so very laboured. We now know he had aspirated at some point so this was inevitable. We had a dreadful night last night but he appears more settled tonight. So hopefully will find the strength to leave us. I am just so very much heartbroken and so very tired not much sleep in almost 5 nights!!! Thanks for your concern xxxx

Doglinton profile image
Doglinton in reply toAndyclairea1

I so hope for a peaceful end for him and you all.

love and hugs, Jean x

abirke profile image
abirke in reply toAndyclairea1

I know hang in there ...sending you lots of hugs and good energy and prayers....

And a verse (6) from an old Hymn,

Peace, Perfect Peace

by

George T Caldbeck

It is enough, earths struggles soon will cease;

And Jesus calls us (now) to Heavens perfect Peace

Nanny857 profile image
Nanny857 in reply toAndyclairea1

Andrea, I really feel for you. I have been in this position with my dad, he had cancer. My sister and I sat with him in his last week and got very little rest but we both wanted to be there for him just like you. Even though it is hard, painful and exhausting for you, when his end comes you will be glad you did, I know we we're and that your dad is finally at peace and free from PSP. Will pray that you will get strength to get through this very difficult time.

Lots of love, Nanny857 xx

Not what you're looking for?

You may also like...

Advice please on how to deal with dads unpredictable behaviour...

Dad has been fast tracked for and has been granted CHC which i have been told is a miracle, so why...
Millie1218 profile image

Angry and upset

Very sad that Dad is being taken from us so rapidly. He literally cannot do a single thing now,...
FranR profile image

Here we go again

Hospice nurse stopped by yesterday, told mom that dad has some mottling in his knees, the nurse...
bgentges profile image

A good bye to my Dad

Hi Friends, It is very hard to say my father passed away.he was very well on that day..he took bath...
sonikaKharb profile image

Progressing fast

Since my parents moved in with us 7 weeks ago, my dad has gone from walking with me holding his...
Momto5 profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.