Everyone talks about all the horrible side effects of Sinemet and how their loved one is much better without it! S has been on it now for over a year and I can only say good things. His movement is a lot better now, than it was before, allowing for PSP taking it's toll. They have just given him some to take at night, to help with moving around in the bed. This has improved, no more just collapsing in bed and staying in the same position, can even roll on to his side now!
I know he hasn't recovered full movement, but is nowhere near as stiff as before! I could feel the downward spiral then, even with loads of exercise and he had a personal trainer to try and help with the stroke damage, which we had presumed was causing all his problems. Now, I feel he is on an even keel and the physio is now starting to help and he is improving!
I write this, as I sometimes feel everyone is extremely negative about the drug, I know it's not helping a lot of people and they are suffering bad side effects. But I am worried that new people might be put off taking a tablet that could be of benefit to them!
Lots of love