I am totally frustrated at how much this disease can make someone suffer! My mother has had PSP for eight years and still there is no respite and now her motion is erratic and takes 3-4 days even with laxatives, her speech is unclear, she sleeps most of the day.
I live overseas and my father is her main caregiver with two helpers. He calls me at least twice a week and tells me how the condition is at home and I just go into such a stressed state as I cannot help them in any way and it gets really hard to boost his morale when I am miserable hearing about mom.
This has a domino affect on my two young kids and I lose my head at them
Just felt so frustrated and had to voice my feelings somewhere, so hence this post.
Thank you for reading.