I live 200 miles away from my mum who is suffering from this horrible disease. I have a school age family and work, so visits to her are limited and infrequent unfortunately. My dad is her main carer but my two sisters are local and they are amazing with the amount of care and support they give both my parents. None of them make me feel like I am not doing my best but I wondered if there was anything else I could do. There must be relatives out there who are in the same situation who could give me some guidance. I try to ring her at least twice a week but her speech is becoming a problem now and I can't always understand her. She understands me though and I don't want to treat her like an idiot by just making "hmmm" noises! I am in my early fifties and thought I could cope with most things but this reduces me to tears because I know the contact will get less and less. Oh and by the way - did I say that my dad's deaf and won't wear his hearing aid? This means that I can't even have a proper conversation with him either so that he could pass news on to her. Does this sound selfish of me? I hope not.
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