"Constant change is here to stay" they say and, heaven knows, that's something those who have PSP and their families are more than a little aware of. Every year, month, week; every day it seems sometimes, you have to adjust to the new normal. A loss of mobility here, a difficulty swallowing there, and all the rest that goes with this vile disease. Again and again we adjust, we make the best of it; we adapt routines, equipment, homes, lives. We get knocked down, we get up again, we keep on keeping on. And then the day comes when we say goodbye and our heart breaks and there's a new normal to get used to. A new normal that involves loss and grief and pain and a gap that is impossible to fill. How do you get used to that?
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