Bill passed peacefully from this world this morning at 8:00. His labored breathing and his high fever slowly left him after only two and a half days. And now I am sure that he is with our Lord and Savior, Jesus Christ. He had Communion on Friday before Resurrection Sunday (some call it Easter) and started his active decline on Monday afternoon. He is whole again and at peace.
Thank you all who have followed us on our dreadful journey and been so supportive and loving. Hospice was absolutely wonderful as were his private caregivers. God makes such wonderful people to help us out. We just have to find them.
I love you all and pray that peace comes to you, too.
Caroline
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I'm very sorry for your loss, Caroline, but can see that there was mercy in this, at last. I wish you the comfort of your memories of your loving husband and in knowing that he isn't suffering any more. Peace to you, Easterncedar
I'm so sorry Caroline but thank God that Bill's time on this earth passed peacefully and PSP is no more. I'll continue to pray for you Caroline during the next few difficult weeks as your life changes as well. It must be a comfort to know Bill is now safe with Our Lord but it will take time coming to terms with your loss.
NannaB, our husbands seemed on such a similar course. I hope the Lord is kind to you both and does not make this process more than you can handle it together. Thank you so much for your kind words. They do help immensely.
caroline simmons I am sorry to hear of your loss of bill I have no words that will make it any easier for you but you are in my thoughts bless you and your courage for what you have done for him in hes' time of need take care peter jones queensland Australia psp sufferer
Peter, you are the one with courage! We all have taken heart from your posts - always so upbeat and never complaining. I wish you well and will pray that the Lord keeps you in his arms. Thank you for your kind words. They have meant so me.
caroline hi mate I just wanted to say thank you for those kind words
and replying to me when you have so much on your mind now \\may you take comfort in the knowledge that bill has been released from psp and is whole again god bless you peter jones queensland Australia psp sufferer
Dear Caroline
So sorry to hear of the loss of Bill. May your faith sustain you in the coming days and may your memories of him be enriched as time goes by. He is now at peace in the Saviour's arms.
Strelley, you have been such a source of strength through your information over these months. How can I thank you for that? Your kind words now mean so much. I will stay connected through this site to try to help others as I have been helped. I realize that I had such great doctors, such wonderful caregivers, and the best hospice team (Blue Ridge Hospice, Winchester, VA) ever. AND the most courageous, non-complaining spouse ever.
My thoughts are with you at this terrible time, but at least Bill's fight is over. Please, please take lots of time building up your strength and accept all the help and love that everyone will offer.
So sorry to hear of your sad loss. It is such a cruel disease. My husband is in rehab hospital following a fracture now in his 4th week. I am hoping he can come home soon once a care package has been sorted. He is eating very little and has refused a PEG but his mobility is improving a bit.
You will be in my thoughts and prayers. I pray Jesus can bring you comfort and peace of mind, and I am glad that you have the support of fellow Christians.
Love Suzie
Take care all of you after your loss, with love Catherine xx
I'm so very sorry about the loss of your Bill. I'll be praying for you during this darkest time of your life.
It's been more than a month since Dale left me -- and I still want him back every minute of every day. To paraphrase C.S. Lewis in "A Grief Observed" (which I highly recommend), "The only way to handle suffering is to suffer through it."
The Hospice grief counselor has been very kind. He listens and that's all I need, better than batting my words about four empty walls in a house that ceased to be a home when my beloved died. The counselor also drops off the requisite claptrap of "comforting" pamphlets written by well-intentioned minds that could never compare to Lewis'. In fairness, though, one never knows when a solitary term or phrase might germinate a truly comforting notion that had been tucked away in the recesses of one's own mind.
I'm not very pleased with "God's will" right now, but must admit that He has to be the only reason I'm holding together. He helps me put one step in front of the other every day. May He do the same for you, my friend.
Hi Carla, I'm so pleased you posted here, ( I sorry for the reason though). I've thought about you often over the last few weeks. I can well understand how you feel about God's will at the moment. It is very difficult to understand why these things happen as they do and I hope we can ask questions when He takes us to be with Him.
My husband returned to the day centre at our local hospice today and staff were surprised at his deterioration during the last 12 weeks. I suppose I don't notice it so much being with him all the time.
I do hope it won't be too long before you can enjoy life again Carla.
Sorry for your loss Caroline,you hopefully take great strength that Bill has returned home after passing a terrible test on this earth..love and prayers , Rollie
So sorry to hear of your loss Caroline, please accept my sincere condolences. I am glad the end was peaceful and the distress was over. Although knowing the suffering is over and that they are safe with the Lord is a huge comfort, it doesn't fill the hole that person has left behind in our hearts and lives. Please please take care of yourself for a little while now and allow yourself not only the time to grieve, but time to find yourself again outwith being a caregiver. May Bill find peace and joy in his next journey and I send love and prayers for you to cope at this very difficult time. xx
May you be strong, and the happy memories come back before long.
As with Carla, I have found the hospice's bereavement group a great help - we have all been there (not all with spouses, one at least after losing his father) and can talk or not as we choose, and understand if someone is suddenly a bit emotional. Mostly the atmosphere is upbeat and happy, with lots of laughter, and we go away feeling refreshed.
A walking group is developing, and one or two cook lunch together, go to bowls, play scrabble etc. Takes time but we are gradually moving on together - it was a year before waking up one day and realising that I actually had some energy.
I am so sorry for your loss Caroline I know how empty without Bill you must be feeling but I pray that each day will get better for you. It is now five months since my husband passed away and I miss him every day but I am glad that he is now at peace and free from PSP. I hope that with time you will soon feel better.
Caroline, I celebrate your Bill's departure to be with our Lord. He is at peace where there is no pain or tears. The release from the torture that is PSP is sad for those of us left behind but it better for Bill who has peace at last. Please stay on the site and help people like me who need your knowledge and support. Your life of a caregiver is not over, now you need to be caregiver to yourself. Bill would want that. Jimbo
Caroline..our prayers are with you tonight....no matter what things are different ,hopefully with a deep enough prayer you will get a sign maybe not today but sooner than later that Bill is a ok and looking after your future,,love,Rollie PS that happened to me when my brother transferred to the next world last summer,remain strong !
So sorry Caroline.just one week after my dad,and even though your glad he's a peace,you miss them more than ever,I feel so empty inside,keep strong xxxx
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