My Mum passed away on 29 December. Approx 2 years after her diagnosis of CBD.
I am so comforted that, as per her wishes, she stayed at home.
the NHS have been amazing, she had carers 4x a day and every piece of equipment they though could help,
She was “well” until 23 December and I then just knew she was dying. Her eyes changed, she couldn’t stand at all and was very sleepy. She was nursed at home in her own little bed with the help of the District and Marie Curie nurses. My siblings and I done 2 hour shifts through the night. She had a syringe driver for pain meds and was lucid until the last few hours.
I am heartbroken and in denial but so at peace that we were able to keep her at home.
My darling little Mum Frances was a quiet little warrior.