PSA climbing: Been a while since I... - Prostate Cancer N...

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PSA climbing

Pizzle123 profile image
15 Replies

Been a while since I posted, Long story short. Radiation 2019/2020. Psa was lower than a snakes guts. then it started to rise and was advised by urologist to have salvage surgery. Our friend TA advised against this. Sorry TA but to keep my Sheriff happy went through with it on 15 february 2023. I ended up with a staf infection and had 2 weeks in hospital then 2 weeks at home visiting hospital every day to have my intravenos antibiotic changed. since then I have had a pain where the prostate used to be. Uro's say take panadol and nurofen. waste of time . Purely by accident I found that anti inflammatory pills do the job. 2024: PSA rose rapidly to 3.8 and the oncologist has put me back on ADT [eligard]. I've had 2 Pet PSMA scans in 12 months and it shows absolutely nothing. My question is, what could possibly be causing my psa to rise rapidly?

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Pizzle123 profile image
Pizzle123
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15 Replies
Xavier10 profile image
Xavier10

When they took what remained of your prostate out, surely they analyzed it. Anything? Maybe a different type of scan is necessary. there are a few types of PCa that don't light up with PSMA

Pizzle123 profile image
Pizzle123 in reply toXavier10

This is something I will be asking my Oncologist when i talk to him in march. I need to go prepared this time

Tall_Allen profile image
Tall_Allen

Too bad your "sheriff" had an opinion. You have to have whole pelvic radiation + 2 years of ADT to get the micromets in that area. Unfortunately, the radiation on top of the surgery will probably have urinary side effects. Maybe a few months of ADT before radiation starts will give it a chance to heal.

Pizzle123 profile image
Pizzle123 in reply toTall_Allen

Thanks for your reply Tall_Allen. They tell me I cannot have radiation again. I already have incontenience since my visit to hospital with the staf infection. The Dr that was on when I was admitted insisted that I have a catheter in against my wishes i might add as the prostate had been removed 3 weeks prior. I had no incontenience issue before that. then it was UTI's consistantly for about 3 months during which time I had to self catheter 4 to 5 times a day. I"m almost ready to throw the towel in. I'm 68 years old and had a gutful.

petabyte profile image
petabyte in reply toPizzle123

I was just listening to a podcast yesterday where a well known professor of radiation oncology mentioned re irradiation as one of the better options for recurrence. But ofc it depends on the individual case.

Btw I don't understand the Sheriff reference.

youtu.be/xZYMTRjKI9U

Pizzle123 profile image
Pizzle123 in reply topetabyte

Sheriff aka Wife

Tall_Allen profile image
Tall_Allen in reply toPizzle123

I hope there is a special place in Hell for your urologist.

dhccpa profile image
dhccpa in reply toTall_Allen

A clarification, TA. Do you recommend that every newly diagnosed man whose PCa seems to be confined to just the prostate also have whole pelvic radiation up front? Or are there exceptions to that guidance?

Tall_Allen profile image
Tall_Allen in reply todhccpa

No, only if they meet the Roach criteria.

dhccpa profile image
dhccpa in reply toTall_Allen

Thanks, didn't know how widely used that was.

Mgtd profile image
Mgtd in reply todhccpa

I had that used by my RO to offer whole pelvic radiation as an option. Just made the decision a lot more fact based for me.

Auiron profile image
Auiron

I'm not sure your PSA is that much of a factor here. The NHS UK has concerns if your PSA is over 10 aged 68.

My situation is far more serious with PSA29 and Tessla MRI scan at PIRADS 5. I will post more information on this separately.

You are toughing it through it appears and you should be proud of yourself. If we could see what is going on inside us after surgery the same as a serious wound on the arm we could then understand the slow recovery.

My journey at age 81 looks more ominous. However, I walk over 10,000 steps a day pushing to 15,000. With a hip ache and some thigh pain, I still walk on regardless. I'm not quite sure why sometimes but to hell with it I continue on.

Keep on going and keep fit, you appear a long way into your journey to recovery - good luck.

kiyo profile image
kiyo

Sometimes an infection or an inflammation can cause PSA to raise.

Pizzle123 profile image
Pizzle123 in reply tokiyo

Thanks for this input, I will be asking the question when my oncologist talks to me again. My oncologist seems like a nice enough bloke but he always finishes a sentence with the word YEAH. And that pisses me lol

Don_1213 profile image
Don_1213 in reply toPizzle123

Mention that it annoys you to him. I'm sure it pisses off other people (yeah!).. and perhaps he'll try to change if he's told he's doing it. Sort of like telling a friend he has a booger caught in his mustache... might seem insulting but still worth doing if you value the friend.

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