Newly Diagnosed (need advice) - Prostate Cancer N...

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Newly Diagnosed (need advice)

witantric profile image
11 Replies

Some history (all these tests done at University of Wisconsin (UW) Health).

Oct 31: (mpMRI) showed PIRAD 5, PIRAD 4, and PIRAD 3 and a herniated BPH capsule (not sure what that is:-))

Dec 7: (MRI guided UroNav biopsy): Urologist is really good (fellowship at Mass General and Cleaveland Clinic). He was chatting through out the procedure. 4 samples each of of the mpMRI suspicious areas and 12 from other areas (so my prostate is probably like swiss cheese:-))

Dec 9: The urologist called me. He said that all samples but one were negative. One showed tiny amount of GL 6. We are getting second opinion from JHU and also getting genomic testing.

I should be relieved, but somehow I have this lurking suspicion that they missed something.

Thoughts? My wife says I am crazy:-) Her words: "you need therapy not cancer treatment."

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witantric profile image
witantric
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11 Replies
Tall_Allen profile image
Tall_Allen

Congratulations! That's as good as it gets! Not likely they missed it, and with active surveillance, they'd catch it before it does harm.

witantric profile image
witantric in reply to Tall_Allen

I should be relieved, but I am not:-) Thanks for the assurance Tall-Allen. BTW, you are a real jewel in this forum. Your fathomless knowledge is appreciated by all. Well, I am going to enjoy few days before deciding to worry again:-)

Peeffervescence profile image
Peeffervescence

Congratulations! You really should be relieved. Plan on getting regular PSA tests to monitor your prostate health and get out there and enjoy your life.

conbio profile image
conbio

1) got a look at it early, 2) results are good for a monitoring plan. Honestly - hang in there, get your regular tests, and take the wife out to dinner :)

maley2711 profile image
maley2711

I had only one targetted area...a PIRADS 5. 6 samples taken....all negative. In addition, I had 12 systematic biopsies done at same time ...one core was less than 10% G 3+3, and another less than 10% 4+5. obviously, it would have been very easy to have missed that G 4 + 5.

I have read studies that concluded that often post-RP pathology finds that the actual cancer can often be found at a radius 50% greater than radius seen by MRI. Also , PIRADS 5 areas are of such a suspicious nature that many Docs will want to re-biopsy such areas.

I'd say celebrate the fact that nothing was found that would indicate a large volume significant cancer, but expect your Doc to be fairly aggressive in suggesting frequent PSA checks and additional biopsies no less often than every 2 years?

I needed Propofol sedation for the biopsy session, and then left clinic with catheter, so additional biopsies not something I would look forward to !!!

If your fear is just too much for you, discuss saturation biopsy with your Doc? Of course, that is less dramatic a procedure if your prostate is not enlarged!!

aceace12 profile image
aceace12

your wife is right ,,,, AS for you .... good luck....

leach234 profile image
leach234

I totally disagree with posters here. I had an MRI of my prostate (after waiting 6 weeks for my prostate to heal). It matched up exactly with the needle biopsy I had. It sounds like your needle biopsy missed some of the tumors in your prostate that the MRI found!

witantric profile image
witantric in reply to leach234

I had mpMRI before the biopsy. Biopsy was MRi guided. I think that is the protocol at the large teaching hospitals.

witantric profile image
witantric in reply to leach234

BTW, rest assured that I will be very "active" in my surveillance. For example, I am thinking of already getting a PSMA PET Scan.

marnieg46 profile image
marnieg46

Hi witantric,

Perhaps you might be interested in the content of the most recent podcast from Professor Declan Murphy who discusses the issues faced by those with G6...is it or is it not cancer. There is a bit of a sound glitch but if you can block that out it will give you a bit of a snapshot of the current thinking and also diverse opinions there are in this space.

youtu.be/s2dYwatKQU0

witantric profile image
witantric

BTW, I chatted with a urologist at Mayo Clinic. He pointed me to this article for conditions that "mimic" cancer on prostate MRI. ir.lib.uwo.ca/cgi/viewconte...

Note sure what atrophy is. Cells in prostate dying?:-)

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