newly diagnosed and confused already

I'm 59 and was diagnosed two months ago. PSA of 7.7, two cores positive at low volume (5%) with a gleason of 3 plus 4. I've been doing my due diligence over the last two months with a lot of internet research, meeting with surgeons and radiologists and talking with folks who have gone thru this. Was leaning towards surgery and then leaning towards radiation. Just had a follow up PSA and it has now doubled to 13.9 in four months whereas before it was very slow growing. My urologist wasn't overly concerned other than to say I was no longer a candidate for active surveillance. Rather than taking my time I now feel like I should choose between either

surgery or radiation based on whichever one I can get done first.

11 Replies

  • I had surgery. It was my best option. I am now cancer free.

  • Thanks Bob, very happy to hear about your outcome. Did you consider radiation at all? Have side effects from surgery been much of a factor for you? How long ago did you have your surgery?

  • I considered radiation, but my urologist said it can have side effects. A friend of mine had radiation 2 years ago and he still has problems. My surgery was November 24, 2015. I have a little incontinence, but it is getting better.

    Click on my name to search for other posts with details of my whole cancer journey. Biopsy, testing, surgery, urinary catheter, incontinence, impotence, physical therapy for incontinence, etc.

    I am 62 years old.

  • Penile Rehabilitation Therapy following Prostate Cancer Surgery is one of my posts.

  • My urologist also said if I was 72, he would recommend radiation. Since I am 62, he said surgery was better. With radiation, it can come back in 10 years. At 62, my body can stand surgery better than if I was much older.

  • Mike, first of all, did you get a second opinion on your Gleason score. Have it sent to a known credible source like Dr. Epstein. Second, a lot of things can affect the PSA score. Did you ride a bike or have sex of any kind in the few days before your test. An infection in the prostate can also raise the scorer. Then if you have nay kind of urinary tract infection, it could also raise the PSA score. All these happened to me and my PSA bounced around from <1.0 to 8.0. A Gleason score of 3+4 is considered lesser risk compared to 4+3. You have time to make a decision based on your score. Keep taking the PSA test and check to see if any of the conditions I mentioned are present before you take another. And get that second opinion.

  • Thanks and yes I did send my biopsy slides to Johns Hopkins for a second opinion. They came back with the same 2/12 cores positive and 3 plus 4 although the Johns Hopkins results showed slightly less volume ( 5 and less than 5% versus 5 and 10% from the original reading). I don't think I had a UTI and didn't ride a bike and not sure about the sex at that time. In the four months between my two PSA tests though I did change my diet significantly and lost 30 pounds and greatly increased my workout routine. I had a small hope that those changes might help with PSA or at least not make things worse which is why this big leap pretty much has terrified me.

  • PSA scores are not reliable. My PSA was 0.7%, which is normal. Yet, I had a biopsy and I had 2 of 12 samples with cancer cells. They had grown within 6 months. The biopsy was done because my urologist found a nodule in a prostate exam.

  • Thanks. I have had several DRE's and all have been normal.

  • That is good. If you have any questions, please ask. Knowledge is power.

  • A friend of mine who is 56 chose radiation. He had it done in February and March of 2015. He still has painful urination. He said the doctors know and said it may not ever go away. This is one reason I chose to have surgery.

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