ANY SUGGESTIONS?

[charliecar]

Hello, I am new to the group. I joined so that I can get advice and have questions answered since I have a fatal illness and am running out of treatment options. I have been battling prostate cancer since 2009, but found out in 2015 the cancer has metasticized throughout my bones. I have been treated with androgen deprivation therapy, radiation, enzaludamide for 16 months, chemotherapy (docetaxel) that did not work and now am on radium 223. After 6 treatments of the radium, I will be put on another chemotherapy called cabazitaxel. According to two oncologists there is nothing after this treatment unless I am suitable for some clinical trials.

I will do my best to answer questions from other men in my situation and hope to receive advice and be made aware of new treatments whether they be in Canada or other countries.I am considering LU177 if I am eligible. Good luck to all in this situation!

Chuckcar

[rf3rf3]

So sorry for your situation. I can’t imagine. All I can say is there are lots of clinical trials out there and if you need help finding them do a search on clinicaltrials.gov . Praying for you , my man.

[jamessorenson]

Charlie - I was also diagnosed in 2009. It looks like your cancer has progressed faster than mine. I discovered a few educational courses that helped me understand cancer better. Here they are, for what it's worth:

coursera.org/learn/cancer-m...

coursera.org/learn/cancer

coursera.org/learn/prostate...

Good luck.

[kmack57 in reply to jamessorenson]

those links don't work

[kmack57 in reply to kmack57]

if you search understanding prostate cancer they come up, thanks

[jamessorenson in reply to kmack57]

Sorry. I ran them together.

coursera.org/learn/prostate...

coursera.org/learn/cancer

coursera.org/learn/cancer-m...

[kmack57 in reply to jamessorenson]

thanks!

[lillyofthevalley37]

Take bicarbonate of soda half a teaspoon a day in juice

Lugols iodine

Vegan diet

Inositol

this is how I am treating my husband

[Blaguy]

Stop in one of those places that offer stem cell therapy on a sign outside . Don't go to one that advertises on tv or newspapers.. There you will start vitamin c

Intravenous therapy and talk to other cancer victim patrons who will offer suggestions. This will not interfere with any other treatments from your doctors...

[charliecar in reply to Blaguy]

I've heard about high doses of vitamin c before.

[charliecar in reply to Blaguy]

Have you tried the high doses of vit. c yourself? If so, do you think it helped?

[Blaguy in reply to charliecar]

Sorry for the delay..I replied sooner but it's stuck in my iPhone. I have not had the need myself..I did radiation fairly recently but if it reoccurs I will definitely start c.. The people I see while I'm getting chelation look healthier by the week but I don't know what type cancers they have or what else they are doing...

[Hidden]

I'm really sad to hear of your plight. I can't offer you any information about any more treatments that you could try. Please carry on looking for whatever you can find. Just be careful unscrupulous people don't take you for a ride with no benefit. You are vulnerable and suggestive,.

At the same time however, this is not an easy subject, but you have to consider your whole life journey. At the moment I still wish to carry on living and would no doubt do as you're doing if I were you. I find it hard to imagine that there's people who wish to end their lives rather than carry on living with Multiple Sclerosis, the pain of terminal cancer, Neuromuscular Disease etc.

You might not wish to hear, and I don't really want to consider for myself, that life ends for us all. It's inevitable, one way or another. It's the end of our path. What's possibly more important is the manner of its ending and the quality of the journey to its ending.

It might be better to be mowed down by a fast traveling vehicle that you didn't see coming, or suffer heart failure in your sleep. To see it coming imminently must be awful.

I was inspired by my mum. She had pancreatic cancer. She knew her death was inevitable from it about 15 months before it happened. She found acceptance. It seemed her flame burned brightest before it was extinguished. She put all her matters in order for her passing, arranged her own funeral and said long goodbyes to those who knew here.

I don't say give up. I say consider all your options.

[charliecar in reply to Hidden]

Thank you so much for your words of wisdom. We have the attitude that we must enjoy living while I am still in relatively good health and as of yet feel no pain. We still laugh at life's funny moments and appreciate every day we have together. But we will keep trying to find a treatment that will extend my life. Thank you for your kind message.

[Hidden]

Pleased to hear that your spirit is good.

Wish youa ll the best