Go Figure: Go Figure. After completing... - Prostate Cancer N...

Prostate Cancer Network
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Go Figure

Number1gland
Number1gland

Go Figure. After completing a bone scan & ct scan Thursday I was told I have advanced prostate cancer that has spread into a couple of near by lymph nodes. Gleason score was 7 and psa is 32 and they found cancer in all 12 samples taken on biopsy. It's not to my bones yet. All the statistics I've seen say I only have two years to live. I'm 56 and in decent health and urinate without any pain or blood. Would Provenge be right for me right now or do I do the hormone treatment first as my oncologist suggested. Pretty scared thinking I only have 2 years left when I don't feel any pain anywhere.

15 Replies
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Don't sweat the statistics! Many are living many years after being diagnosed. Look at the Advanced Prostate group here in Healthunlocked. Alot of folks with alot of answers!! My bet is your here for many more years! Read and learn. Journal your questions. If you can't find an answer ask!

Thanks for the advice. I got so many questions I don't know where to start. I guess I'm still in shock.

2 years my ass. Don't even starting believing that BS. If i listened to those "stats", i would have been dead 2 years ago. Suck it up, roll up your sleeves and get busy living. It takes more work but you can live a good life for years to come. Good luck to you.

Thanks. I'm starting to see now I need to stay away from stats right now.

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Number1gland
Number1gland
in reply to Hidden

Thanks. I'll be looking into this. I'm going to need some support. I know that already.

I agree with the other two men! Be proactive and do some research and possibly even get another opinion concerning options! And take a day at a time! Look into diet options as well! And this...I don't believe doctors need to tell predictions about life span. Every person's body is a unique as well as a "gift".

Peace,

Bill

Thanks Billy. I never have been able to force myself to eat right. No it looks like I'm going to have to. It's been kind of hard to do being single and working all day then coming home to an empty house. I don't feel like cooking and it's hard to cook for one.

Single as well...however, I am slowly going towards more fruits and veggies...the ideal as some would say is a plant- based diet...as I say that would be "ideal"...Youtube has some interesting videos about diet and prostate cancer...

Again, take it one day at a time!

Peace,

Billy

Not sure where you live, but I found some food delivery services that will deliver pre-,made meals weekly. Average cost is about $10/meal and its good. Vegan options available.

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Number1gland
Number1gland
in reply to Hidden

Thanks for the input. I'm already seeing that I can't believe everything I hear. I'm going to start with the web sites you all mentioned to find more support and do more research. I live about 25 miles North of Cincinnati and I've only been able to find one support group but I'm going to keep looking. Thanks again for giving it to me straight.

Tom19
Tom19
in reply to Number1gland

Trust me...research and then research some more. It has made all the difference for me and how I look at things.

Thanks for your suggestions Joel. I wish I did live closer to NYC because I'm having a hard time finding a face to face support group close to my house. I'm going to keep looking though. I'll ask the docs about Firmagon. Is it one of the better drugs to take? That is if any drug is good to take. Thanks for the web sites. This really sucks but I guess it's time for me to accept it and go from here.

In addition to the excellent feedback you've gotten from the group, I'd encourage you to find a medical oncologist who knows a fair amount about PCa. I met with a urologist and radiologist and while helpful, they are focused on how their treatment will work rather than understanding my cancer. On the other hand, the oncologist set up my mpMRI (which has been very useful) and a Decipher biopsy test that has not come back yet. The more information you have, the more informed your decision will be, albeit a difficult one. I am leaning towards surgery and expect to make a decision, in conjunction with my oncologist, later this month - my in-depth research really helps. I see the decision as building confidence given that there is little certainty. In addition to treatment, a positive outlook and healthy lifestyle should help. I wish you all the best.

Stephen Fry had the same as you he got it removed

they had no right to say that to you surely

Right now I'm a little disappointed with myself & Cleveland Clinic. I chose the clinic because after research I found them to be the best place to go within my reach. (it was still a 4 hour one way drive) I went there because I was feeling things that I thought were related to pc. Thank god they were not related but after meeting with an urologist/surgeon I was sent to the cancer center to meet with an oncologist. I first told him that I wouldn't be able to keep coming to Cleveland for treatment and ask him if he could refer someone closer to my home. He only spent about 15 minutes explaining to me what I had and the treatment I was going to need. No options were ever mentioned. Then he said he was going to set me up with some oncologist at the University of Cincinnati Cancer Center and they would be contacting me. This was on the 2nd of August so on August 7th I hadn't heard from anyone so I emailed him through mychart and he said they would be getting a hold of me by the end of the week. Well it's Friday the 10th at 12:30 pm and I haven't heard from anyone. I don't know if it's just me or not but I thought by picking the Cleveland Clinic as my first visit they would be a lot more informative than they have been. I guess I got to just get the phone book out and start looking for an oncologist and any other type of doctor I think I should be going to see. I'm praying this pc is as slow growing as everybody seems to think. I just don't really know where to start looking around here and the impression I get from the clinic tells me to just say F*^K It and don't do anything because I don't have any symptons or feel any pain at all. I'm still confused and lost.

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