CATCH-22 GETS ME NOWHERE?: I took T... - Positive Wellbein...

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CATCH-22 GETS ME NOWHERE?

GKeith profile image
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I took T3 only, 30 mcg’s last week, 10 mcg’s every 8 hours, and felt fine. Then, to please my endo, again, and myself, I suppose, I added T4 @ 75 mcgs, the last dose I was on before I crashed into headaches, 2 months ago, thyroid storms more likely, constant but I’ve stayed once again, on the 75 T4 now for 2 weeks but now it has come back to haunt me. I believe now that I either cannot take T4 or the T4 is converting to T3 and making my dose to much T3 and/or the T4 is turning into RT3 & causing the head-aches. I will, now, stop the T4 totally, starting tonight, once again, because of the headaches &, again, every night becomes a nightmare. I’m constantly afraid to take the 75mcgs of T4 with the 30mcgs of T3 & even when I cut down & take seven and three-quarters of T3 three times a day, with the 7.5 mcgs of T4 instead of the 10 mcgs of T3, 3 times a day, going from a total of 30mcgs of T3 to 22.5 mcgs of T3, seems to be too little T3 to rid me of the headaches. I’m damned if I do & damned if I don’t, scared to take the 30 mcg of T3, instead of the 22.5 and scared not to take it. It makes no sense & I’m going around in circles, with my dizzy headaches. Anybody got any ideas? The endo has, basically, given up; he’s awaiting my blood results scheduled for 45 more days from now; it’s all he ever does is look at the blood tests. I believe I should get NDT, because I know people who take it & just add some extra T3 alongside of their prescription dose. Any thoughts? I feel, once again, like I’m running in circles but am helpless to do anything about it. I’m in a Catch-22 because of ? something I can't figure out and I'm not a doctor or a acientist.

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GKeith
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RoadRunner44 profile image
RoadRunner44

Apologies GKeith but I dont understand your post and would love to help if I could. Unfortunately I dont know what you are referring to when you mention.... T 3, T4 and NDT.. Are you referring to some medication? I'm so sorry as you sound as if you are at the end of your tether.

SadieHU profile image
SadieHU

Hi GKeith I'm afraid I won't be much help either on advice with your medication, but you may be able to get better advice on the Thyroid UK community? healthunlocked.com/thyroiduk I hope they can help! Best of luck :)

Definitely speak to doctor - or phone hospital or emergency hospital go

A complicated post to understand unfortunately GKeith, and in any case, probably not wise to canvass the opinion of laypersons. If your endocrinologist isn't getting it right for you after all those years of training, there's not much virtue in asking any of us.

Sorry to hear you are struggling though, and best wishes for the future and finding a solution you can live with.

GKeith profile image
GKeith in reply to

Believe me, you be amazed how little specialists know about their "speciality."

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