Not a great day today, did the washing as planned, but otherwise just been on the Internet, watching TV and just having one of those days, at least tomorrow I've got my reading group.
Forgot to ask yesterday if anyone did the Shared Reading online, how did it go and did you enjoy it
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Surfed the net, commented on HU community’s....listened to music on Alexa(Amazon) watched football on tv and will read my book in bed before lights out this evening. 😀🌈
Hi Jennymary, Well your day sounded OK to me, and mine was fairly similar. There seemed to be quite a bit of admin to take care of online this morning, and it just flew by. I'd planned to bake bread, but in the end decided to watch TV and relax too. It just didn't seem like a day to be doing much!
I played with the cat too this afternoon. He pesters me to have me control his 'prey' toy, so he can leap, chase, catch and conquer the mouse on the end of the string!
I'm looking forward to more TV this evening, as I have some 'catch-up' programs to watch. Hope you enjoy your evening too! 😊
Been out for a walk to the local shop this morning for some provisions and then on future learn, then for a lunchtime walk and after lunch applied for 5 jobs and then carried on with my book no angel which is 834 pages long and I am now on page 730 so not long until I finish it.
Good evening Jennymary, I have ordered a single bed online today for the spare room and a new microwave as my microwave packed up yesterday. I have a bit of an ear ache and sore throat today to I haven't done much just pottered, hope I can shake it of with an early night. Pip my dog, he's just tried to toss the computer off my knee so he can sit on it. My computer is half on one knee and he is on the other. xx
Hi Jennymary ,
It's good to get the laundry done. We do our laundry once a week.
It's nice to have a somewhat quiet day while at home. I hope you enjoy the reading group tomorrow. 
My day is going well. I had breakfast and lunch. Did some replies and editing on HU, checked my messages on and off HU and texted friends. I plan to do some reading before dinner and afterwards. I will also do the word scramble puzzles for the next day.
Have a great evening.
Hi Jennymary
I also did washing, made my sourdough dough which is now in loaf tins slowly rising. I also went out on a lovely bike ride along a lovely country road.
I also spoke to my youngest daughter and spoke to someone else on the phone who is administering an IBS survey which I'm taking part in.
Hope you enjoy the rest of your evening.
Take care and stay safe.
Alicia🌈😊
I went for a walk around the park with my sister, she brought me some currant pastie and some ginger buns😋
I did some ironing/washing-went for a walk with my husband-had a lovely Chilli Con Carne for lunch (by kind permission of a local hotel here-(they deliver)-mixed it up with lots of different veggies-had some coffee (proper coffee) and a very nice Toblerone ice-cream-yummy! Did a few crossswords read a bit of one of my books.Watched a film on my phone (Netflix) The Book Club (Jane Fonda/Don Johnson-and many other 'golden oldies"-which thoroughly enjoyed.Tried to contact friend in B'ham no reply-tried to contact a local friend no reply!Well thats all folks!
Have a good Day- all of you!
This is not helping. This is the third attempt at typing this. For some reason disappeared off screen. Feeling suicidal. Went for a walk yesterday, was a disaster. DH with dementia, can hardly walk, has other medical problems as do I, and he was constantly moaning. Got home, I threw a screaming fit. Feeling really ill, fibro in flare, anxiety through the roof and having panic attacks.I am scared if I need to go into hospital he won't cope, He is in his own little bubble, but I really need a bit of love and understanding from him to be able to carry on, but he doesn't want to know, turns everything into an argument. Things calmed down. I changed bed, did a load of washing, got lunch and tea, found a brand new jigsaw at the back of the cupboard, and watched tv. I really wish this would end.
I'm really sorry you've been having a tough time, do you have family you can ring, or medical support, if not please just contact your GP and let them know how difficult you're finding this now, I'm sending loads of love and hugs filled with strength to help you xxxxxx
Thank you so much Jennymary for your reply. . We have two daughters living nearby, the youngest is doing our shopping and fetching prescriptions, the other is working from home, together with her hubby and my grandson, who we have seen a couple of times during last three months. They are good kids, but have their own lives and problems, my eldest's husband has had a stroke (better now, thankfully, but still a worry) and she has had a couple of melanomas' taken off and is still under observation. The youngest has my grandaughter home (aged 14) and her husband has just returned to work as a long distance lorry driver (both have medical problems) and she has just found out she has lost her job. To be honest, I have tried, talking to them but they don't want to listen to any problems we have, and I am reluctant to push the subject in case it causes a fall out! As to the doc. I think she is at a loss. Whenever I go with a new symptom it is always put down as fibro, I can't take the medication she has offered, and we have a bit of a dispute as I think a lot of my problems are down to mismanaged thyroid medication, which has been up and down over the last two years, but which she says is under control. Was trying to take this further - going to see an endocrinologist privately, before this began, but it has now got shelved. To be honest have lost a lot of faith in doctors and at the moment feel too tired to do any more pushing. I know that sounds defeatist but I seem to be continually fighting for everything. If I was fit it wouldn't be a problem I would just get on with it, but because fibro isn't visible, no one in my circle accepts there is anything wrong with me. So it is difficult. Thanks anyway for caring. It helps a lot. Today is another day. Onwards and upwards. Take care. xxx
Hi, I would suggest you get in touch with Age UK/Age Concern or adult services at your local council. All these places can offer support with how to care for someone with Dementia and what to do if you do need to go to hospital. Dementia is a set of symptoms and leaves the other person very frustrated as they know it is not them normally.Please look after yourself.
Thanks for responding. I have been in touch with Age UK and adult services, a few months ago. We are on the list for emergency care if needed. I think it is more a case of me letting off steam and feeling insecure. I did visit my doc about once a month prior to lockdown and she did listen and offer me reassurance, even if she could not offer any more practical help. (I have gone through a myriad of hoops over the years, without any meaningful success) . I do know I have a problem in not being able to accept I will never get better, and am still constantly searching and hoping for answers. Obviously anxiety and stress plays an enormous part in this and living in a difficult situation at home as well as the current climate is not making things any easier. Once we are able to socialise with other people again I think things should get better, as I have only had limited contact with 'so called' friends for the last three months. Once again it is a case of others not acknowledging our situation, (no one has heard of fibromyalgia and aren't sufficiently interested to find out - I no longer try to explain when I am having a really bad flair, just say I am having a bad day and leave it at that so no one ringing to check how we are, only when they have some news - good or bad - to impart; or a case of me ringing to check on them. Sorry if that sounds 'feeling sorry for myself' but I have only just realised how superficial some of my friendships are. I suppose it is like everyone else, things are OK when things are going OK .. It is when the chips are down things change. Stay safe.
Bless you, Can i ask if you have a day centre that you could both go to for a break and have you had a look at support groups for fibromylagia. I have Meniere's disease ( balance disorder)not heard of by most people, or if it is they just think it is being dizzy. So i understand where you are coming from when you have no interest in support from others.
I guess the advantages of lockdown ,will have made people realise who is genuine and who is in it for themselves. I personally would help or listen to anyone in distress whether i know what it is or not, just having someone to acknowledge what you are going through is a comfort to most of us.
I have a vague idea it is to do with your nerves become inflamed and the slightest movement hurts. I am also guessing that stress exacerbates it just as it does with MD.
If you want to feel sorry for yourself you go ahead it sounds like you are carrying quite a load. Maybe contemplate changing your doctor when this is over and maybe asked to be referred to someone who you can talk to such as an advocate who maybe able to offer more help and support. Take care Here if you need to moan. xx tomorrow is another day and the sun could do to reappear as i find this always brightens up the day.
Thank you Brandibell. You are quite right. Just having someone listen and acknowledge your problems is a lifesaver just now. I think we are all finding things difficult at the moment. When things were normal we were struggling a bit, but overall managing pretty much OK. We did have a social life, and family visits; ; and did get out and about to town on the bus, where we usually chatted to folk we knew; but obviously it will be a while before we return to that. I don't think changing doctor would help. To be fair I have had loads of tests, medications and therapies over the years, obviously without success. There is no cure, I have difficulty accepting that. At the moment I am in the process of exploring the thyroid route. I think that my problems could stem from that, but the doctors don't agree so that is another challenge. I hope you are coping OK as if you are alone it is a struggle day to day. Like you say, tomorrow is another day. Take care and stay safe.
A quiet day so far took Archie out earlier and now sat watching something recorded earlier having a bacon buttie and looking at the rain. Enjoy your reading group tomorrow.
Just realised this was yesterday's post!!!! So hope you enjoyed your reading group as think it's mornings. So yesterday 'chatted on weight loss forum as Wednesday my weigh day I'm a Wednesday wobble warrior, so mainly answer and supporting each other. Then few other phone calls as a friends birthday and rang another friend to say I'd but money in her bank that got back from our cancelled trip.
Hello Jennymary
I have not posted my daily routine before, I am "retired". I read HealthUnlocked posts for an hour. watched news while waiting for rain to stop. Extracted a stripped bolt from grandson's four wheel drive hub so he could proceed with repairs. Repaired some vinyl siding damage from tornado/straightline wind to my work shop. Read online technical reports from national standards committees I am on. Repaired intake duct work on air conditioning of one of my rental houses. It was long day and did not get in my usual 3 mile walk. Tomorrow will be a great day with plenty to do and people to enjoy on my walk.
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