Seemed a bit quiet on here the last few days, apart from a few upbeat souls telling us how much work/diy/decorating they have done, or how far they have walked, cycled during lockdown. Anyone else on here with fibro? Not sleeping. In agony from a flare. Doing a bit at a time, pacing, i.e. tidying garden, housework, looking after DH. Leisure limited to tv, reading, jigsaws. Today being shut in got the better of me and my anxiety, and I persuaded DH who has limited mobility, to walk around the block with me (around 300 m total). Feels like we climbed a mountain, but as Boris says, baby steps. Be nice to hear from some friends with problems, to know they are managing OK during this mess. Take care all.xx
Anyone there?: Seemed a bit quiet on... - Positive Wellbein...
Positive Wellbeing During Self-Isolation
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Anyone there?
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ShelWhitt
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I do not have fibro but chronic pain back and shoulders etc .
Hi there, I'm quite new to the site and don't have fibro but suffer badly with chronic pain from back, neck, shoulder, arms etc with nerve damage. I try to use the PMP tools I learned at pain class but I too am really struggling just now. I feel my pain is the worst and most widespread it's been for a long time. I'm also having big problems with sleep and also really horrible nightmares when I do manage to get some sleep.
I also spend my days doing some cross-stitch, bit of gardening, reading, colouring etc and although try to remember my pacing, everything seems so much harder just now.
I got paint and wallpaper just before lockdown but def can't face it. My hubby also doesn't keep well so things on back burner for now.
I know things will get better and I have a lot to be grateful for but it's just such a difficult time.
I am also in touch with a few others in similar position and they too seem to be flaring so I do think a lot of others are feeling it too.
Hope things calm down for you soon, take care of yourself.
GhoundsReading Rabbits
I have fibro plus a while lot more! My eczema flaring just now. On my own so trying to keep on top of gardening etc. I have had insomnia for many years so can sympathise. Look after yourself.
Hi ShelWhitt, We do have times when visits to the community go through a quiet spell, but I think also that we are all a little bit battle-weary at the moment as well as, for those of us in England, a new set of rules and a new message to get used to. We're all a bit scared and wondering what's next, I think.
I don't have fibromyalgia, but I have a good friend who does, and I do know what pain she goes through for a lot of the time and a lot of disturbed nights.
I do know from personal experience what pain at night is like and shortened sleep for several reasons, so I'm really sorry you are suffering. I think our other challenges of our current time tend to combine with our other health issues and manage to make everything seem a bit worse. Hope your fibro flare settles soon so that you feel a little better.🙏
Veteran250• in reply to
I have arthritis in both knees, used to be in pain 24/7....., someone suggested I try .....Masons Dog Oil..... for the pain, I rub it into my knee joints before bed, and sleep through the night, pain free..... you can purchase it on eBay!
ShelWhitt• in reply to
Thanks for replying. The major problem for me at the moment is as well as the physical problems my anxiety is through the roof and where I normally see the doc. I am reluctant to do so as things are at the moment, so a chat on here does help. Take care. xx
SORRELHIPPOReading Rabbits
Yup, stuck indoors, but have been for last two years, pain from Crohn's at present, sleep better in the day, however have decorators who also drill and sand, in the flat above me and the flat below. Sometimes I get a little intimidated by the amount of stuff some of the people on here manage to do. So go through periods of keeping my head down, although I read a lot of the posts about 1am. Looking forward to the day some of my friends can visit, rather than just telephoning me.
Maybe I would feel better if I could get out as my anxiety is through the roof, but at least we have a small garden. ~Thanks for replying. Stay safe. xx
bobbybobbAmbassador
Hi ShelWhitt, sleeping is never good with Fibro and near impossible when in a flare, then the added problems of what's happening at the moment. It's good you are trying to keep busy and have managed to get out for a walk with your husband. I'll be glad when appointments start up again. I've been without physio for two months. I have insomnia whether I'm in a flare or not. This might be worth looking at if you haven't looked at it already. nhs.uk/live-well/sleep-and-... 😊😊
Was in the process of having physio prior to lockdown. Had a phonecall and a chat, and basically told to carry on with exercises.
Hi bobbybobb. Think I am on wrong site, but never mind had a chat with some lovely people nevertheless. Part of me is worrying again that there is something major wrong that hasn't been picked up. My anxiety causing me stress again I expect. xx
I think in these current times many people are finding that at times they just stop coping. Many people are suffering from stress and anxiety who have no health problems. So imagine how it affects people like us who do have multiple health problems. You know that an increase in anxiety or stress can trigger a flare. I think also that during the past couple of months it has been difficult to access services so any problems we have, unless it's Covid related, we feel we have been left out in the cold. Yesterday was a huge step in slowly and gradually getting society moving again. There are many people from the other HU communities who have come here during these times of Covid for a little bit of added support because it has been such a drastic change to our lifestyle that has affected people mentally and emotionally. It's good to see you here. 🌸🌷🌼
Hi. I am one of the people who have been quite philosophical about things. We can't do anything about it so make the best of it. I have been in my garden and greenhouse a lot, sewing and dancing. These three things have kept me busy. Guess what! My back has gone. I have been in excruciating pain for the past two days. Can't walk, can't move without making a moaning noise. Using heat pads, ibuprofen gel and paracetamol. Just lying here. I refuse to feel sorry for myself. I am taking this time to meditate on things that are important to me and planning my escape from lockdown and laying down. Giving me time to recharge my batteries. On saying all this I would like to see my Osteopath. Stay safe. x
Good for you. Up until about 2 years ago I managed to cope quite well in spite of problems, but since DH diagnosed with dementia and can hardly walk, plus other medical problems and I had three very bad falls to add to my troubles anxiety has taken over and I struggle with stress all the time, in spite of various attempts to deal with it. Still there are others a lot worse than me and I try to console myself with that thought. Tkae care. xx
I'm one of those people who gets very quiet online when not doing well. I think there are a lot of us like that. It's both wonderful and heartbreaking to hear about all the fantastic stuff everyone else is doing during lockdown - really impressed with their ingenuity, happy for them too, but can feel worse about myself because of it. Please know there are lots of us who are doing the best we can but aren't really all that okay. You're in good company. Keep taking care of yourself.
Thanks Treesparrow. I think I needed that and it does help a little. You stay safe too. xx
Me too. I find it very hard to "put myself out there". Autism and a lifetime of abuse have left me with no confidence. Nobody should feel bad because of things they can't do, we are all different but all of us matter.
You are so right about that. Take care. xx
You too. Hope you don't mind me saying but I admire you for being a carer, it can be very lonely and isolating at the best of times which these certainly are not.
Thank you, I don't mind at all. To be honest things aren't too bad at the moment, it is early days, but when you don't feel well yourself, it is frustrating repeating things over and over, constantly checking things, and and being continually questioned over minor things. Unfortunately patience is not one of my qualities at the best of times, but over allwe are muddling along quite well. I just wish I could get rid of the pain for a bit and manage a nights sleep! I need to keep reminding myself there are a lot of people far worse off me! And tomorrow is another day! Take care.
I really hope you manage to get some rest. Everything feels so much harder when we are exhausted. I too am not particularly blessed with patience....there are always people worse off but that doesn't mean you don't have needs yourself. Remember to be kind to yourself and if you can take some time to yourself perhaps in your garden with a cuppa.
• in reply toTreesparrow
As long as you know you are doing your best then it doesn't matter what others are doing as you are you with different circumstances to them.
I do say about episodes I have had since this kicked off of when I have felt fed up to make others feel better that its not just them who feel that way!
Such a difficult time for the world at the moment - lack of sleep is so debilitating and does bring you low. Try to stay strong love and hugs ❤️🌈
Thanks for replying. Stay safe. xx
Hi I have fibromyalgia to and osteoarthritis I was just about to start hydro therapy but of course that's not been possible. I struggle to sleep due to pain wake every hour and half, constantly tired, and can't manage much if any exercise. Like you all I seem to do is watch TV do puzzle and embroidery. Well done for managing to get out hopefully things will improve for you soon. Fingers crossed.
Yes, one step at a time, but had a really bad night last night and today, but am hoping things improve tomorrow. Stay safe.
I was on here not too long ago & experienced the same problem ! I think it goes in spurts around here. I try to visit as much as possible; I’m still personally “sheltered” so my world is limited to the
TV (Yeah, I know, but I love watching the
Food Channels!), the daily newspaper, laundry & other “domestic “ chores! But, you know ,it’s really OK! Both my “Partner”
& I have the age factor & health issues that being around others could prove deadly, the trade-off isn’t that bad! So, when I come on here & “see” others with health issues similar to mine I don’t feel so alone!
And, trust me that’s the worst part of this
Virus - being alone 😞😞
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