Hip Replacement surgery while on prednisone - PMRGCAuk

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Hip Replacement surgery while on prednisone

Purplecrow profile image
19 Replies

i have been on pred since 2013, to treat pmr.

i need hip replacement, but my ortho wants me off my dose of 5 mg. Pred. I have tried numerous times to end this small (but consequential) dose of pred, and have always created a flare resulting in returning to the dose.

Any words of wisdom, or suggestions for dealing with this situation? Im seriously disabled by the hip degeneration, and need the surgery, but worried about the pred issue.

Thanks in advance, J

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Purplecrow profile image
Purplecrow
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19 Replies
piglette profile image
piglette

I had a surgeon like that. I was on 5mg and he wanted me on 0mg. I explained it wasn’t that easy and after some discussion he agreed to the 5mg. Is your surgeon private or NHS?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply topiglette

Purplecrow is in US….

piglette profile image
piglette in reply toDorsetLady

Sorry I should have checked!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply topiglette

😊

Miacaro45 profile image
Miacaro45 in reply topiglette

I live in the US and I never heard of a surgeon telling a patient who has been on Prednisone, etc to get off it cold turkey. She needs to find a new doctor.

piglette profile image
piglette in reply toMiacaro45

The trouble is in UK there are some surgeons who know very little about drugs. Perhaps doctors in the US have better training on drugs!! Also I have a surgeon friend who thought PMR and fibromyalgia were the same thing!

Miacaro45 profile image
Miacaro45 in reply topiglette

If this wasn’t so sad I would laugh

piglette profile image
piglette in reply toMiacaro45

It is frightening though!

Tracyw666 profile image
Tracyw666

I had a knee replaced and my surgeon was ok with me on 3mg as I had to stop the Tocilizumab for 4 weeks. All the best for your surgery.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Many on here have had hip replacements [and other surgeries] on that and higher levels of Pred.

I can understand why surgeon is wanting you off Pred, they are always concerned about healing, but as piglette has said it isn’t that easy, especially after such a long period.. in fact it could be quite dangerous to get off, it could lead to an adrenal crisis.

You need to discuss with surgeon [finding another one if they aren’t prepared to operate at this level] and with input from an anaesthetist.

Good luck

suzy1959 profile image
suzy1959

I had 2knees and 2hips replaced while on 11mgs. Both my surgeon and anaesthetist were fine with that. I healed normally every time. You need the surgery!

Downtime profile image
Downtime in reply tosuzy1959

I had foot surgery when I was on 10mgs and it healed perfectly

Janet57 profile image
Janet57

I had a full knee replacement last year whilst on 3mg Pred and no issues. Fully discussed with surgeon and info provided on pre op and day of surgery. All went well 😊

Jeanlindenburn profile image
Jeanlindenburn

I am having hip replacement surgery next month . I am currently on 5mg… surgeon explained there is higher chance of infection, but is happy to do the surgery.

Viv54 profile image
Viv54

I agree with the above, ive had 2 hips done on 7.5 of Pred. Talk again to your surgeon im sure he will understand .

marionofnorwich profile image
marionofnorwich

Change your surgeon if you can as he doesn't understand PMR or steroids. I had a hip replacement last year and they temporarily increased my pred from 4mg to 9mg and in a few steps back to 4mg after the op. which is where my rheumatologist has said to stay for the foreseeable future (though have dropped to3.5mg recently). I had no problems and healed quickly although they did discover that I have osteoporosis probably due to 4 years of pred. But for the op it is not necessary or wise to drop from 5mg to 0 quickly

PMRpro profile image
PMRproAmbassador

Find a different, realistic surgeon. This comes up repeatedly and yes, IDEAL is to be on no pred, but if you are on pred for another medical reason, and you are, for PMR and for adrenal insufficiency, then the surgeon has to accept that. If one surgeon won't budge, then you will find another who understands why you can't just stop it. One surgeon admitted they operate on patients on pred on a daily basis - it just requires more care on their part.

Darkchocolate1 profile image
Darkchocolate1

I had a total hip replacement over a year ago when I was on 12 mg. Of prednisone for PMR. My surgeon told me they have to do surgery on folks on prednisone all the time. Anesthesiologist gave me IV hydrocortisone during surgery and for several days after. They monitored my blood pressure and blood sugar closely while I was in the hospital. I was 77 when I had this surgery. Last June I had a shoulder replacement with no problems. You May need to find another surgeon who is willing to do it. Best of luck.

Purplecrow profile image
Purplecrow

thanks everyone, your reassurance is encouraging. I have other doc options, will try to chat with current surgeon first.🙏🏽💜

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