Sjogren s disease

[arvine]

Im not sure where Inshould be posting this , so started here, for mos now, along with so many other issues, have had symptons that sound like sjogren s disease, mouth parched like cotton , eyes ,extremely dry, particularly on waking, or laying down, and hurting muscles and joints , although some pain caused by arthritis, so has anyone out there been diagnosed with sjogrens and if so what are symptons and treatment

[piglette]

Once you have an auto immune disease the chances of getting a second is increased. If you think you have Sjogren symptoms I should check with a doctor as there are several tests that they would need to carry out.

[arvine in reply to piglette]

Ok thanks pglette

[DorsetLady PMRGCAuk volunteer]

Fair enough for now but if it is diagnosed there is a forum dealing with that -

healthunlocked.com/sjogrens...

[Bramble2000]

it’s easy to test for Sjögren’s via blood tests and/or litmus testing. The symptoms you mention could be that but could be many other things such as peri or menopause.

[rabbitbrush76]

I was diagnosed with Sjogren's in my 40's, and am now in my 70's. My symptoms started with dry eyes, dry mouth and dry nose. I always used OTC eye drops and a humidifier next to the bed because nightime dryness is most problematic. Recently, after being diagnosed with GCA, the dry eyes became worse and I am now on a cyclosporin eye drop which helps. Other than that, there are no pharmaceutical treatments that have been developed that I am aware of. Plaquenil is sometimes used for Sjogren's. I tried it and it didn't help. Dental hygiene is really important, but no matter how rigorous, the lack of saliva causes caries. The Sjogren's Foundation has a wonderful website with info on research, products and patient stories and support. GCA is the 4th autoimmune disease, I have and right now it has risen to the top of the discomfort list, a place previously occupied by Sjogren's.

[arvine in reply to rabbitbrush76]

thank you

[IlovePorridge]

Sjorgen's is a beast! It is much more than dryness and itchy skin. I have all the well-known symptoms, but the worst is the overwhelming fatigue and all over aches. There is often internal organ involvement too. Kidneys and lungs particularly. I now have pulmonary fibrosis as a result. It's important that you get checked by a rheumatologist, as well as a dentist and optician. There is a group on here for Sjorgen's. Good luck.

[arvine in reply to IlovePorridge]

Thank you, yes I ll see my rheumy about it

[Numptybrain]

I have it and seeing an ophthalmologist at the hospital in July. I’ve been using helps and drops even a heat mask but still having issues. I also have RA and lung kidney related issues.

Take care

Wendy

Xx

[Wonderfullifeandmore]

Hi I have Sjorgons, I use eye drops daily prescribed by my gp. I use xylimelts which stick on the inside of your mouth to keep it moist overnight, these are available on Amazon. I wouldn’t be without them. I sip water all day or suck sugar free sweets because the dryness of the mouth is awful. I hope this helps you.

[arvine in reply to Wonderfullifeandmore]

Thank you fo you have any other symptons, I have arthritis , pmr diagnosed 2016, rheumy says doesnt think have pmr now, still on 4 mgs pred, but muscles , joints hurting every day,

[Wonderfullifeandmore in reply to arvine]

Hi Arvine, yes I have rheumatoid arthritis. Osteoarthritis, osteoporosis, PMR and I am currently on 6.25mg of pred

[arvine in reply to Wonderfullifeandmore]

Sounds like me, everyday a challenge, especially mornings, do your sjogrens symptons come and go, find mine very bad through night ,parched , waking with tongue almost feels stuck to roof of mouth

[Wonderfullifeandmore]

yes but that’s why I use xylimelts bought on Amazon. You stick it on your gum and it keeps your mouth moist all night. I sip water all day,