Prednisolone

[Didgeydo]

Can anyone tell me when they are on a very high dose of steroids for a long time,do you suffer with mood swings and lack of sleep. Thank you

[DorsetLady PMRGCAuk volunteer]

Hi and welcome,

Unfortunately both are side effects of the Pred…. and hopefully should improve as you reduce.

As this seem to be your first post on this forum maybe have a read through these link - general information etc -

healthunlocked.com/pmrgcauk...

Sleep -

healthunlocked.com/pmrgcauk...

Anxiety etc -

healthunlocked.com/pmrgcauk...

As you say high doses, does that mean you have GCA .. would be good if you could put a bit more info on your bio/profile please.

[PMRpro Ambassador]

Hi and welcome!

Yes, many people experience it at any dose of pred but some don't. But it can happen with untreated PMR/GCA as well - I had PMR for 5 years before starting pred and was moody and irritable, could fly off the handle at anything, And sleep was a nightmare, mainly because of pain. After starting pred it was a real improvement.

[Angelsmummy]

Hi D,yep,was down to 4 1/2 mg,had a flare,up to 15 mg now have disturbed sleep( again.,) and horrible vivid dreams.Just part of the lovely Pred I am afraid Slept better on lower doses.xx💐😜

[Didgeydo in reply to Angelsmummy]

Take care and sweet dreams to you.

[ngchgc]

Yes, very moody and have high anxiety, and the wake up call comes in at night at about 2 pm, give or take 30 minutes, and stays for hours. Then a nap after breakfast and again mid afternoon. Does not matter if I skip out on the naps I still wake about the same time , if I don't have the naps, I am terrible! Nap time 20 to 30 minutes.

ATM 20 mg morning and 5 mg at night, was on 10 at night and reducing to 5 has made no difference. Tried altering the time taken at night, no difference.

Pulse rate resting, anywhere from 95 to 106, Dr says it's OK! It's not! If I can get it down, I am much better for the moody and anxiety times to disappear, for a short time.

Seeing the Rhumy in 2 weeks and will talk to him about resting pulse rate, and what can be done.