Interesting news from British Society of Rheumato... - PMRGCAuk

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Interesting news from British Society of Rheumatology

Baner profile image
10 Replies

Hope this link works, afraid I’m not very techy. If not article can be found on their website.

rheumatology.org.uk/news/de...

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Baner profile image
Baner
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10 Replies
PMRpro profile image
PMRproAmbassador

Thankyou - is the use of the term "experts by experience" a new PC way of saying "patient"?

Baner profile image
Baner in reply toPMRpro

I hope you are one of the three “experts”, if not I wonder how they picked the members of their GWG

PMRpro profile image
PMRproAmbassador in reply toBaner

I'm not!!! I think Lorna Neill is though I don't know. The interviewee presumably is - don't know the name, probably a Leeds patient - might know her by another name of course!!!!

Coffeebeans profile image
Coffeebeans in reply toPMRpro

I am one of them, based in West Yorkshire. My name is Kath and it isn't me in that article.

We haven't really got off the ground with the guideline work yet but will keep everyone posted via the charity when there's an update.

I'm very glad to be able to feed into this process from a patient perspective.

PMRpro profile image
PMRproAmbassador in reply toCoffeebeans

I wish I could come along in your pocket!!!

Estellemac profile image
Estellemac

Nice work good research and an interesting step forward.

piglette profile image
piglette

thanks Baner. I hope some doctors read it. I am not holding my breath.

123-go profile image
123-go

Thank you for this. I’m all for ‘…a holistic view of the person…’.

PMRpro profile image
PMRproAmbassador in reply to123-go

Me too - would make a change with some doctors wouldn't it!!!

123-go profile image
123-go in reply toPMRpro

Wouldn’t it just!

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