psoriatic arthritis: had anyone been diagnosed with... - PMRGCAuk

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psoriatic arthritis

arvine profile image
9 Replies

had anyone been diagnosed with psoriatic arthriitis, and what are symptons and how was it determined, I have had psoraisis for years, but my condition never brought up or associated with the arthritis I have been diagnosed with, only talk about osteo, ?

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arvine
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9 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Are you on this forum which covers the subject - if not, you might find something useful on there -

healthunlocked.com/beyond-p...

arvine profile image
arvine in reply toDorsetLady

Oh no Im not thank you will check out

Mamamia21 profile image
Mamamia21

After years of thinking I had PMR (which I believe it was) and being on steroids, the specialist who could never really decide changed her mind and diagnosed psoriatic arthritis. I have had psoriatic episodes during my life but I would not have made the connection with arthritis myself. My hands got very swollen and my neck very stiff and after scanning my hands they found significant inflammation. With this, they decided to try Barcitinib a biological drug and it has worked. I am also down to 2mg of steroids now and apart from the odd niggle I am good. I hope this helps...

PMRpro profile image
PMRproAmbassador in reply toMamamia21

It is strange - a lot of doctors WANT to make PMR psoriatic arthritis, my UK rheumy did! Then when there are all the signs with having had psoriasis in the past they ignore it!! They are now looking at JAK inhibitors in PMR I think - like MTX and the other DMARDs that work sometimes, I think success is in the cases they have mis-diagnosed. What we need above all in PMR is a reliable diagnostic marker.

arvine profile image
arvine in reply toPMRpro

Yes something better to help with diagnosed, Ive had psoraisis for years, still have seems worse use a cortisone cream doesnt seem to control so well, all I know is every joint in body so painful, especially wrists hands fingers and ankles, dont notice hip until I have to stand or walk, struggling to do the 5 mg top up or start the 1/2 mg taper so I can get off this pred and get on some ant inflammatory meds for arthritis, So at end of my rope with this chronic pain, and not being able to do things I use to do, baking, knitting even cleaning , only get out for drcappt, have friends that help with groceries, and psw help with laundry and wiping my floors, in tears couple times a day, and dreading on coming winter weather, and cold, make hard to getvl out tovappts

PMRpro profile image
PMRproAmbassador in reply toarvine

Then why not ask your rheumy if what you have could be linked to the psoriasis? There are good medications for that.

arvine profile image
arvine in reply toPMRpro

Yes Im planning on doing that as soon as I can get appt, apparently all booked up until New Year, and can I ask if you can suggest and name some of the meds, as you know Im in Canada

PMRpro profile image
PMRproAmbassador in reply toarvine

No - no idea what they use I'm afraid. They probably start with methotrexate and the usual biologics are the anti-TNF drugs. But more than that - can't say. But it won't be just pred.

arvine profile image
arvine in reply toPMRpro

Ok thanks

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