At the time I was diagnosed with possible GCA (April 2023) I had a massive allergic reaction on my face, similar to ones I’ve had in the past when triggered by latex or other contact irritants. It resolved in a few days on the highest doses of steroids as did the psoriasis on my scalp and other skin irritations - sweat rashes etc. My skin had never been so good in decades! However as I reduced steroids the rashes on my body and the scalp psoriasis (though not the allergic reaction on my face) started to return and have got worse despite all my usual treatment with emollients etc. I’ve now been on 5mg for a couple of months and the last two weeks or so the rashes have really flared on my chest, abdomen, back, elbows etc. starting off like red pin pricks then spreading out into flaky itchy patches that merge with each other to create larger areas of redness. This last week I’ve been treating it with hydrocortisone cream which seems to be breaking it up a bit but I’m still very uncomfortable. Rheumatologist doesn’t seem interested and has just told me to go back to my GP ,which I will do on Monday, but I’m not sure if this a steroid induced rash, a rash produced as a result of steroid withdrawal, a symptom of whatever auto immune condition I have (tests for GCA were negative) or something like a delayed reaction to to the Shingles/Flu/Covid jabs I’ve had recently. Recent blood tests seem OK though inflammatory markers continue to be slightly raised, I’m otherwise feeling well, no headaches or aches and pains apart from a bit of inflammation in my Achilles tendon, and mentally sharper than I was on higher doses. I haven’t made any changes in my meds, diet, washing powders, bath stuff etc that might account for an outbreak so I’m at a bit of a loss.
Has anyone else had something like this on lower doses and how was it resolved? Rheumatologist wants me to continue reducing and I’m inclined to agree as I’d like to get off the steroids asap and give my liver a rest.