Yes, more good news!! This morning I woke up because my feet were cold; they were cold and wet. There was a 15 x 18-inch puddle of soaked bedding under my ankles and feet.
My left ankle had been red for about a week, and I outlined the red area with a permanent marker to see if it shrank or got larger. In 2021, I had cellulitis and was an inpatient (I don't recall my steroid dose at the time). I received double bags of IV antibiotics and had to continue for six weeks at an infusion center. In the hospital, they took me off my prednisone and Actemra.
We went to the ER; they took blood and blood for cultures, did an ultrasound for blood clots, and x-rayed my leg! That is why insurance companies in the States and hospitals fight...and the insurance companies get rich. When the doctor said I had cellulitis, and they were giving me a script for Doxycycline, I asked her what I should watch for. She said, "Everyone is different, so I can't say." I pressed her because I am still on 60mg of Pred and the Actemra. She repeated herself and then in frustration said " some people get sepsis, some lose a leg and some get a fever, everyone is different." I was gaping at her poor choice of words, and she apologized....the said fever, chills, increased redness, etc. After that, when the nurse came in, even though it was the weekend, I told him I was not comfortable being discharged until he discussed my prednisone with my rheumy, who I am scheduled to see on Monday. He did page the doctor, who said to stay on the 60mg and have her come to the office on Monday.....I'm coming.
I think I'm so junked up with meds and separate issues that I am between a rock and a hard place. Is it enough on the antibiotic? Some would say no; I've listened to a few lectures tonight. Who wants to fool with the pred and endanger the right eye? Nobody....which is so blurry. Then we have my growth into Parkinson's and that new med...
Right now, my PJ leg is soaked already, and my husband has spread towels on the bed. Poor soul. He was looking in different closets tonight for a towel and asked me where they were. When I said the linen closet in the bathroom, I could see him replay the loss in his mind and figure out where the linen closet was. So many times, I wish he was present, but he just isn't there anymore. Now , I struggle to stay on top of things, and life moves at the pace of quicksand.
I'm not available all the time, but I will follow up with my visit on Monday. I know this cellulitis has to be dealt with properly. Maybe they are doing just fine, and I'm anxious. I hope to taper by 10mg on Monday. xxoo I miss all of you....xo This group is so supportive and well, personal like family. 💞
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Actemra Update
