QUICK UPDATE I am touched and humbled by all your lovely reples, encouragement (and if ciursedonations). I watched the London marathon this morning (Sun 21-4-24) and blubbed for a solid 4 hours. I'm away now until the next weekend so will try to respond to each of you asap as and when I can get wifi. Good news is I'm Covid clear so conscience-free to go on a little mini-break
I've been ummin and ahing over whether to post this. I'm doing a sponsored event, not for PMRGCAuk on this occasion, but I am planning something for PMRGCA week in June, watch this space.
I'm a long-term PMR sufferer as many of you will know from my frequent postings, usually about trying to be positive in the face of adversity and not letting PMR get you down.
With this in mind, I'm going to do a one mile sponsored walk to support one of my best mates who is walking the whole length of Hadrian's Wall, coast to coast across England, setting off tomorrow, a journey of nearly 90 miles which will take her nearly 2 weeks.
My bit is only the very last leg, to wave her across the finish line. I will have to do it on a rollator as I've fractured some bones in my back and I still have active PMR but hopefully the adrenalin will get me there.
I know there have been a lot of pleas for funds for runners in the Marathon recently rasing money for PMRGCAuk to which we/you have all rallied round amazingly and they've smashed their targets, I think around £7000 for the charity last time I looked. But they're all fit and can run, so I'm reaching out to inspire others whose PMR or GCA hinders them from doing what they want to to do in life and inspire people to think about what you can do. There was an article about this in the latest Newswire, do have a read of that section.
My page is justgiving.com/crowdfunding...
Words of encouragement or even better your brass very welcome
PS when people do these things it's not just about raising money, it's about raising awareness of these illnesses. Wendy was diagnosed very late because doctors didn't spot the signs of ovarian cancer, they told her it was IBS. Likewise, all the people that have sponsored the people running for PMRGCAuk will have raised awareness of these rare diseases within their friend and family circles, it all adds up