I attended the Leeds roadshow last week and learnt about the immune system and how doctors make diagnostic decisions. However, I also learnt that whilst there are around 800 'paid up' members of the PMRGCAuk charity, this forum has several thousand forumites! (I think the figure was 3,000 or 5,000) That fact led me to think that if more people paid to join PMRGCAuk, how much more the wonderful folk who run the charity could do to raise the awareness of the two conditions. The charity is run by volunteers and the equivalent of one full-time member of staff, made up of part-time positions.
I consider the £10 I paid last year to have been the best investment in my health care EVER! The support I get from this forum is invaluable and I would never have found you all if it hadn't been for the PMRGCAuk website.
I realise that many of you are in countries sprerad all over the world, but if every UK forumite joined the charity, that make a big difference, I'm sure.
Food for thought for you all!