Buttock pain

[krillemy]

Is buttock pain a PMR symptom?

I suffer from this nagging dump pain. It seems to be where the legs are attached to the hips. I gets worse after walking and standing. I am in the middle of a flair, and I can remenber that I have had it before.

[PMRpro Ambassador]

At least piriformis syndrome and possibly greater trochanteric pain syndrome if your hip is involved. Similar stretches should deal with it whichever it is:

myhealth.alberta.ca/Health/....

health.clevelandclinic.org/...

[krillemy in reply to PMRpro]

Funny. I have been doing those all by myself to get relief 😅

[PMRpro Ambassador in reply to krillemy]

Do they help?

[krillemy in reply to PMRpro]

Yes, but it comes back during the day..

[PMRpro Ambassador in reply to krillemy]

Takes time - persuading it to stretch the bit to reduce the pain.

[Marko666]

I suffer every day from the whole girdle area worse when I've been to work all day that's why I can't get below 15mg after nearly 3 yrs, ruins your life .

[PMRpro Ambassador in reply to Marko666]

I had been on between 10 and 15mg/day for most of 12 years and during Covid and caring for my husband it rose to nearer 20mg. Only being on Actemra has allowed me to get the pred dose lower. But pred certainly didn't ruin my life - it gave it me back and allowed me to cope during some very stressful times.

If you have serious low back pain I suspect it is something more than "just" PMR - has it been investigated properly? Mine is due to myofascial pain syndrome leading to sacroiliac joint issues and back muscle spasms which need to be dealt with separately. Unfortunately, because of anticoagulant therapy for atrial fibrillation I have not been able to have the steroid injections I know would sort things quickly so have had to use other less effective approaches.

[krillemy in reply to Marko666]

I am on 12.5 mg and should be on 15 mg I guess, to cope with the activity level eventhough I can´t work. But I have started MTX and on my way up on that, so I will not ruin the "data" - then I cannot know if the MTX starts working... have you not tried other medication than pred.? I am hopefull, my head is more clear and my hands and feet less swollen.

[Estellemac in reply to Marko666]

I had the girdle pain and had three injections in my back and one in the groin under X-ray to sort it out. The last one worked on the sacroilliac joint. Still have groin pain from tendons being inflammed. I had to stop the AF meds for three days before but came through it ok. It did take almost a year though of them ruling out things it wasnt then waiting for the next appointment. Worth investigating.

[Estellemac]

Buttock pain statred for me when my hip was on the way out and stopped after the hip replacement.

[MiniSpec]

I've currently got pain in my left hip, rather than the buttock itself. In my case I know that it's a result of me reducing my pred dose, as I've had it before in either one or both hips.

Like you I do stretches each day to try and mitigate the discomfort, but I find it worst at night because I can't sleep on the side that's hurting. So instead I have now trained myself to sleep in the recovery position, and this seems to overcome the pain by not squashing the hip where it hurts.

Other than upping my pred dose I've not been able to get rid of the hip pain in the past, but this time I'm going to persevere for as long as I can to see if it eases on its own. Otherwise I'll end up yo-yo-ing for years with the pred.

[Marko666]

Hi everyone I have tried methotrexate didn't do anything for me it's definitely my tendons and everything as I've had scans etc to rule out anything else I had steroid infections and that helped trying to get appointment for another also going to try Leflunomide to see if that helps soon will let you know how that works .

[krillemy in reply to Marko666]

Good luck with Leflunomide, and let us know. For me it is also my tendons, and they keep mentioning PsA, however scans only shows edema under the skin (like blobs), not inflammation, and it seems that PsA should be seen on the scans as inflammation of the tendron - so I still have PMR

[Alchemy8]

Contrarily I find the buttock pain is when I am driving for long distances - like two hours or on an uncomfortable chair. Getting out for a break helps as does clenching and releasing the muscles.

[krillemy in reply to Alchemy8]

Yes I have driven a lot lately..., so that fits.

[Nanatoo]

I definitely had buttock pain, both sides

[BarbB]

Bursitis is a known symptom of PMR. There are bursa that cushion the hip joint that are known to become inflamed. Stair climbing, walking, getting up from a seated position, and squatting can all aggravate the pain. When I had it I could palpate my rear hip bones and detect the tender areas, identical on each side.

[krillemy in reply to BarbB]

Spot on with the stair, walking and getting up. I feel old... I also have some similar pain under my elbues. I hope the MTX has some effect on me, or I need to go up in pred. ones again

[Pr0jection]

Bad buttock pain (I called it sit bone pain) was what sent me to the rheumatologist in the first place. I had sat on a wrought iron chair for 2 hours with no cushion at a friends birthday party in November 2019 and over the course of the next 6 months it became worse. I also had the other symptoms associated with PMR. Once diagnosed and put onto 15mg of pred the pain in my buttocks receded. I didn't have it for about 18 months but then it came back. I do stretching exercises, take a cushion with me whenever I sit in restaurants, etc. but it's still there nagging away. The pred certainly helps so I have some relief for about 9 hours a day and it doesn't ache when I lie in bed at night.

[krillemy in reply to Pr0jection]

well, I guess my question on weather is is part of PMR, has been answered. I up my pred. today to 15 mg as I have my 2 year old grandson over. I won't be sitting much down, but hopefully it will help!

[Pr0jection]

All the best to you.....