I had to have a urgent appointment at my GP Surgery ... who are fantastic. Anyway my markers are up so I have now gone from 5mg to 15mg. All that hard work and now I'm heading upwards again
Early signs were the bruises on my arms and then yesterday I could hardly get out of bed as I was in so much pain. This was at 5am and on getting up I surfed around the web and the general opinion was call your GP when they open.
Even when I was first diagnosed it wasn't this bad. The pain was the worst ever and everywhere. I cannot put into words the pain I am in. I could barely get around the home and, now, 24 hours later I'm not quite as bad but this is awful!
Anyway you guys have a happy new year xoxoox
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discoballs
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Sorry to hear that…are you sure all the pain is a flare, and you probably need to allow a bit longer to get under control even though the increase of 10mg is more than usually recommended.
Sorry - what a disappointment. Had you been hatching it for a while but ignoring things? Bruising is an unusual effect of PMR - have you experienced that before?
Hi there! I think it could have been "hatching" for a while as my wrists were hurting a lot and THOSE bruises on my arms. They aren't huge but are most concerning. I have had bruising appear before. HNY PMRpro
Sorry to hear that news DCS, that is certainly not the way you were hoping to start 2023, best wishes and hope you manage to get it under control quickly.
I hope you have your pain under control again. Talk more about the bruises please. I had several on one arm a couple of weeks ago and now have a large one on the other arm. No falls or injuries that I know of. I have had no bruises previously for two years on prednisone for PMR. I just had another flare of pain so severe I could hardly walk, used a walker to keep from falling. Difficult to do anything just wanted to cry. I had to go from 15 mg to 20 mg to get any relief. This is where I started when first diagnosed very discouraging. I will try again to taper after a Week of getting it under control. My ESR sed rate stays high always, last one was 80. I had my 5th covid vaccine, the bivalent in early Dec prior to the flare, perhaps they are connected. In spite of all the vaccine I had covid disease in Sept. maybe I won’t take anymore jabs. Thanks for sharing your experience.
Hello there! HNY. Yes those bruises. I had been getting them randomly and without warning ever since I was put on Prednisolone about 4 years ago. 80mg .
I had been getting the bruises without bumping into anything and often, throughout the day, I could look at my arms and a new bruise was there. I have asked about it several times with my GP and his colleagues and they say it's pred and PMR/GCA doing it. I agree with them as during this present flare a couple of half inch bruises appeared "just like that" then another on my other arm and a couple of red pin prick dots on my foot.
So I would say it's Pred and signs of a flare.
My wife insists on the bruises being called Purpura.
I hope you are well soon and I've found the best thing for me is to watch my diet I'm almost a Vegan (no preaching here) and have been a Vegetarian for over 40 years. I really try not to eat sugar and love Marks and Spencer prepped food as mostly it's very healthy.
Thank you for your reply. I agree bruises seem to appear with flares. I do believe diet is helpful. I try to eat no sugar and as little salt as possible and as low carbs as I can manage. It is just a long confusing journey. I too take prednisone at 5-6 am. Best wishes for pain free year ahead.
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