Living in hope: Just got call from health Centre to... - PMRGCAuk

PMRGCAuk

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Living in hope

Harrywogan profile image
8 Replies

Just got call from health Centre to say my inflammation levels are up, will speak to gp next week hoping he will not raise my steroids as iam at 2 1/2 and hoping not to go up,iam not in a lot of pain xx

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Harrywogan profile image
Harrywogan
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8 Replies
SnazzyD profile image
SnazzyD

Hello, I’ve got some questions for you. Was there change from the last one? When you say not a lot of pain, what do you mean and where is it? Is it pain that’s always been there or quietly crept on? Do you have any other non-PMR symptoms of any sort? How do you feel? Answers to these might help others to help you prepare for the doctor chat.

Harrywogan profile image
Harrywogan in reply toSnazzyD

Thanks Snazzy, I have no other health problems and quiet active and fit lol that's a laugh with pmr,think there there has been a change never heard anything before, pain more in back of legs but not o lot more nothing that would make take pain meds.thanks x

PMRpro profile image
PMRproAmbassador

Not now maybe - but if it is only just a tiny bit too low to manage all the inflammation it can take a long time to build up far enough to cause symptoms you notice. Leave it then and eventually the dropping tap fills the bucket and it overflows. If the inflammation levels are up and they called you to tell you it suggests they are outside the normal range - so what is YOUR personal normal?It is the trend that matters and how far they are raised.

piglette profile image
piglette

My blood inflammation levels suddenly increase for no reason, if over 100 my GP might call me. I tend to increase the pred if I feel rough, if I feel OK I do not increase the pred dose in spite of the markers.

PMRpro profile image
PMRproAmbassador in reply topiglette

Maybe your liver is asking for some bubbles?

piglette profile image
piglette in reply toPMRpro

That is what it needs. Cognac may be better for it though!

PMRpro profile image
PMRproAmbassador in reply topiglette

You think? We had a colleague who was quite convinced that the bubbles are really good for you ...

piglette profile image
piglette in reply toPMRpro

They are probably right, bubbles it is.

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