Hi fellow GCA patients I would welcome your views on the following:
I was diagnosed with GCA in January last year. I had a flare during April May last year but since then have been tapering successfully to 8mg of Prednisolone in December last year. I tolerate Prednisolone quite well apart from its effect on my hair and skin.
I started to experience some unusual aches and pains in January this year when I tapered to 7 mg and my CSR markers were elevated to between 6 and 8.
On advice of my rheumatologist I increased the dose of Prednisolone to 10 mg. That got rid of the aches and pains but I started to have a bad headache. On the advice of the rheumatologist I increased again to 15mg but am still experiencing the headache although no other symptoms. Paracetamol is holding the headache at bay while I hope the new dose will do its work. I am aware I could have been experiencing steroid withdrawal symptoms so I am hoping the 15mg will work.
I have an excellent and well respected rheumatologist who has seemed very keen to get me on to Methotrexate and offered it last year as well as now. I am very reluctant to start on another toxic drug which may or may not work, has potential unpleasant side effects and won’t start working for 12 weeks.
I would be interested to hear advice from the forum about starting Methotrexate at this stage - should I just woman-up and give it a go or persist with pred? Also how long would you give the 15mg to settle my current headache situation?
Thanks very much