Extremely dry chapped lips?: Anyone experiencing... - PMRGCAuk

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Extremely dry chapped lips?

bethm1129 profile image
35 Replies

Anyone experiencing extremely dry lips with all of this? They continually peel.

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bethm1129 profile image
bethm1129
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35 Replies
piglette profile image
piglette

I get extremely dry lips. At night they even stick together. I never had the problem before steroids.

bethm1129 profile image
bethm1129 in reply topiglette

hmmm, ok. Maybe its the Pred then. **sigh**

Longtimer profile image
Longtimer in reply topiglette

Yes, dry lips, dry eyes and very dry nose....horrible....

piglette profile image
piglette in reply toLongtimer

I get dry, sore eyes too.

Twopies profile image
Twopies

Yes yes and yes. Always look a little puffy to me.

softekcom profile image
softekcom

Yes, I have been experiencing dry, peeling and cracked lips for ages. I've always thought it had something to do with pernicious anemia (Vit B defficiency). Either that or possibly some kindof dermatitis. Does anyone know of any remedy for this? Has anything worked ?

My eyes are constantly watery, not dry.

MiloCollie profile image
MiloCollie in reply tosoftekcom

Watery eyes does mean dry eyes. They over water to combat the dryness. Simple dry eye drops are great. Xx

PMRpro profile image
PMRproAmbassador in reply tosoftekcom

To add to MiloC's comment: in dry eye, the normal thick viscous tears aren't formed properly and the surface of the eye dries out. The body reacts by producing loads of thin watery tears but they just aren't the same quality and because there is so much you end up with streaming eyes.

softekcom profile image
softekcom in reply tosoftekcom

I was checked by an ophthalmologist yesterday. Turns out my eye pressure is high - 40 in the left eye and 32 in the right. I have been prescribed eyedrops that I will collect next week.It could be the Prednisolone. But I remember having raised eye pressure a couple of years before I was prescribed steroids. So not sure.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply tosoftekcom

Pred can increase the eye pressures, did for me, but they returned to normal as I reduced the steroids..

PMRpro profile image
PMRproAmbassador in reply tosoftekcom

That is high - do hope the drops work well. How long have you been on pred? Were you advised to have you eyes checked regularly? You should have been.

softekcom profile image
softekcom in reply toPMRpro

No, don't remember that advice tbh. The eye pressure was picked up at my annual sight test at Specsavers in Feb, and they referred me to Opthalmology. But I remember slightly raised eye pressure a couple of years before Pred was prescribed. So it seems to have been there even before Pred.

PMRpro profile image
PMRproAmbassador in reply tosoftekcom

Anyone on pred should have the pressures checked. According to the local eye dept, it either happens fairly soon or it doesn't. But until you have a good idea, a baseline and annual checks are recommended. Not that msot doctors seem to notice ...

prunus profile image
prunus

I put lipsyl on mine every night to keep it at bay.

Broseley profile image
Broseley

Yes I use Lipsyl every night, which seems to help, as if I forget, it's much worse.

diana1998 profile image
diana1998

Vaseline?

Raewynne profile image
Raewynne

Yes my lips are continually sore since being on prednisolone.Put pawpaw cream on them.Helps a bit.

PMRpro profile image
PMRproAmbassador

It couldn't be thrush could it? It is possible to get it on the lips and it dries and cracks them. If yo uthen use lypsyl or the like the reuse of the lipstick can keep reinfecting it - something you apply with a finger is better to try out. And ask the GP because thrush will need an antifungal treament.

bethm1129 profile image
bethm1129 in reply toPMRpro

Thats a good thought. I'll see if its yeast. Thanks!!!!

softekcom profile image
softekcom

Never thought of that. Because I get the dry corners, I thought it was Vit B deficiency. Lipsyl hasn't helped. I have just started using Blistex, which seems more moisturising.

PMRpro profile image
PMRproAmbassador in reply tosoftekcom

I used to have a problem - very sore lips and reddened around the sides outside the lip. It would tingle when it started but never looked like a cold sore but I tried using acyclovir cold sore cream and it worked very well, especially if I started using it quickly. Worth a tube maybe?

in reply toPMRpro

Acyclovir is available at a wonderfully low price for a 10 pack on Amazon amazon.co.uk/Virasorb-Cold-...

SheffieldJane profile image
SheffieldJane in reply to

That really annoys me about Amazon. Who wants a pack of 10? These things are for occasional use. Do they have a use by date?

PMRpro profile image
PMRproAmbassador in reply toSheffieldJane

That is one thing I don't worry about an expiry date! I won't tell you how old the tube currently in my handbag is ;) It is handy to have several tubes around because i found if I put some on as soon as the sensation of drying lips started it didn't get worse and I used most of a tube every time!

SheffieldJane profile image
SheffieldJane in reply toPMRpro

My mother had the same Golden Eye Ointment for my entire childhood. 😂

PMRpro profile image
PMRproAmbassador in reply toSheffieldJane

And we survived ...

Was reading a who's right thing in the Guardian the other day, partners of various sorts (married, together, flat mates, whatever) and was a pair who fought over the butter! She wanted it in the fridge, he wanted it in the pantry. She reckoned it would be rancid - depends how big the piece is you keep out doesn't it? Couldn't see the problem myself - each to his or her own! I like cold butter - good excuse to slice it onto the bread :)

SheffieldJane profile image
SheffieldJane in reply toPMRpro

Yup!

in reply toSheffieldJane

I need a pack of 10! I have bought 20 before. Just ordered 10 new Raspberry ones as the Shrek ones are sold out.

I really am addicted.

😜

softekcom profile image
softekcom in reply toPMRpro

No tingling, doesn't feel at all like a cold sore. Just dry and peeling/cracked. The Acyclovir sounds promising, so will try it.

I've always thought I have chapped lips even if they aren't chapped they feel it. I am addicted (really!) to Chapstick.... 40 years + and prior to that Lypsyl. Now I use Carmex mint flavour from the Amazon. I have bulk purchases of them all.

Sometimes I get family in the USA to send me goofy ones. At the moment I am using a Shrek one.

I also have a wholesale pack of Acyclovir (Lipsor?)

I am totally addicted

PMRpro profile image
PMRproAmbassador in reply to

You seem to be!!! But overuse is also bad - it makes the lips even drier ...

in reply toPMRpro

I think I'm too late for weaning myself off lip things. My wife even carries an emergency chapstick with her. To not use Chapstick would be like a massive step down of pred. I kid you not!

I am so fussy it's really sad!

borednow profile image
borednow

I use Ultrasun lip protection SPF30 although they've now brought out a new one with SPF50 which I've just ordered from that AMAZing website!!!

bethm1129 profile image
bethm1129

Thank you all. Some helpful hints in there. This is a truly dry lip issue. My top lip has shriveled a bit as if i smoked Marlboro Reds since I was 13. I've never smoked. This just happened about the time my symptoms started in Nov. I use Vaseline and various products that don't have salicylic acid in them (many do). No help. Just wondering if this was a regular symptom. I'll deal with it.

Sharitone profile image
Sharitone

I have the same; I use Neutrogena hand cream, of all things, several times a day. Beware of lip salves with an SPF factor, as they are more likely to cause allergies.

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