Do you know those round cages that they spin for Bingo? With all the balls tumbling around? Well, that is what my head feels like, and my body must be saying, 'What the heck is going on?"
It seems the infection that invaded my body at the beginning of the month has been having fun by upsetting the balance of all the other meds I am on. Yesterday I saw the rheumatologist and infectious disease specialist. They said my system at the moment was like 'a highwire balancing act.' The infection was the trigger, which X'd out the Actemra, which meant more steroids which threw the seizure meds off....so we are holding steady. Hopefully, those meds will be corrected tomorrow or at least played with. The ride has gotten much smoother over the last few days, and I feel much better. The ophthalmologist said he did see an area of my good eye that 'showed some decrease in the visual field.' My eyes seem really sensitive to light, easily corrected.
I'm so graceful~~~I just bumped into a footstool (two days ago), and I got a good three-corner tear in my left leg, so the ID specialist put me on a short course of antibiotics. Sometimes it is a win-win; sometimes, it is lose-lose. I'm going to have to work on the way I carry this steroid-inflated body about!!
The important thing is right now, I have a good team on top of things...for that, I am very grateful, and I don't have to look far to see much younger folks with much worse issues.
Thank heaven we have each other to bounce all this off of to let ourselves know that we are NOT such an extreme exception and things will turn around. 💖💖
On Actemra now and reducing Prednisone
Antibiotics whilst on Pred????
Update on Life, tooth infection, antibiotics and tapering.
