COVID jab

[Suffererc]

COVID jab

Had the jab yesterday. Ache a lot today. Shall I increase Pred dose to 10 just for today. I am on 6 - 51/2. Watched the Webinair with Dr Mackie and I think this was discussed .

[SheffieldJane]

I fell asleep and missed it and she’s my doctor 😠. Was it good? She was a bit apprehensive when I spoke to her on Friday. She’s such a lovely Rheumatologist. I think I would do a temporary increase if I feel unwell, on your dose.

[Suffererc in reply to SheffieldJane]

Yes it was good. I am deaf so had to lip read most of it and it was quite good for me. The only trouble was the questions being asked kept coming up over her mouth. But I think I got the gist of it. You are very lucky to have her as your Dr . Thank you for replying.

[PMRpro Ambassador in reply to Suffererc]

Aren't they annoying? I hear perfectly but those speech bubbles drive me nuts when they are across the slides! And I cannot find a way of stopping them or moving them

[Portobello in reply to PMRpro]

I managed to get the questions to move to a separate panel on right of screen. Much better, but can't remember what I clicked to do that 😏

[PMRpro Ambassador in reply to Portobello]

There was a bubble to the bottom right and I tried that - which resulted in losing the whole screen view!!! So I abandoned that!!!

[Portobello in reply to PMRpro]

I knew it must be possible- the Hay Book Festival screen comes pre-set like that.

[tangocharlie in reply to Portobello]

Opened the chat feature?

[Suffererc in reply to PMRpro]

Didn't manage to find out how to ask a question. Didn't want to mess around 😂

[PMRpro Ambassador in reply to Suffererc]

Those dratted speech bubbles were people asking questions/making comments. Which to me is tantamount to talking during the presentation. But that's too many years of attending science meetings I suppose ...

[Suffererc in reply to PMRpro]

Found them distracting. Looked to see what they were saying so missed bits. Must be a better way of asking questions

[tangocharlie in reply to PMRpro]

Sadly I was one of those annoying people asking questions - I didn't realise the speech bubbles popped up on screen - sorry folks. Later I opened the chat feature which would have stopped them being on screen I think.

[PMRpro Ambassador in reply to tangocharlie]

I couldn't get it to work. I didn't mind the questions so much - it was the chat that also happened.

[Suffererc in reply to PMRpro]

Agree

[Pollyanna16 in reply to SheffieldJane]

There’s going to be a recording Jane x

[SheffieldJane in reply to Pollyanna16]

Oh good. I searched high and low for my membership number, bothered Fran about it, then fell asleep. I am officially unemployable.

[Pollyanna16 in reply to SheffieldJane]

Ha ha “no worries” as the young say x

[SheffieldJane in reply to Pollyanna16]

They also say “ it is what it is” which I find oddly comforting and apt.

[maria40 in reply to SheffieldJane]

There are times when I find it incredibly irritating.

[NursePeggy in reply to Pollyanna16]

Hi Pollyanna16, I missed it too, do you know how or where we will be able to watch the recording? Thanks 🙂

[Pollyanna16 in reply to NursePeggy]

Hi, I’m sure there will be an email & probably a message on here in due course x

[NursePeggy in reply to Pollyanna16]

Ok, brilliant ! Thanks very much !

[Pollyanna16]

Yes, I asked her the question as I thought about increasing beforehand. She said absolutely not. But, do take extra if you are feeling unwell afterwards. Hope you feel better soon. I was fine after 24hours.

[Suffererc in reply to Pollyanna16]

Most of the !all over ache' has gone so decided to stay put.😊

[SnazzyD]

Feeling achey is common for vaccines. It is a toss up. The more Pred you take the more you are going to stunt the inflammatory response to the vaccine that is needed. This is one of the problems with immunosuppression and vaccine effectiveness. It takes a couple of weeks for your full response to happen. If it were me, I’d try paracetamol first. Whether an extra mg or two makes any difference I don’t know.

[SheffieldJane in reply to SnazzyD]

Maybe a significantly bad reaction and being on low dose Pred would indicate the need for a week or so of 5 mgs.?I think the odd day in bed is probably good for us, hot drinks and Paracetamol.

[Suffererc in reply to SheffieldJane]

Don't feel better ever lying in bed. Have to keep moving around. Broken sleep most nights and can't wait for morning to get up 😔

[SheffieldJane in reply to Suffererc]

I used to feel like that and now I seem to benefit from it and experience no pain in bed, just fatigue. My nights are always broken too, I’ve just accepted it now. Or I’m defeated, not sure which sometimes.

[Pollyanna16 in reply to SnazzyD]

Agreed but if you are really struggling she suggested a bit extra would help get over the side effects. I just took my usual dose at 4am plus paracetamol for 24 hours & was fine but was very unwell in the night.

[PMRpro Ambassador]

And as I understood her, Sarah said no, don't increase the pred unless you have any PMR signs. The aching post vaccine is normal and happens with many vaccines. Paracetamol would perhaps be better?