Hello everyone,
I am SO tired and just plain fed up with life and struggling with these diseases and yet having to try to explain things to yet another doctor! Am just about through with this life.
At the beginning of June I was at 8 mg, but In response to PMR type pain and also raised blood markers I upped my dose to 11 and then to 13 to get relief. Been on these doses for a month now. Too long to step down quickly as I understand it. I still have a stiff neck and some shoulder muscle? pain. Worse on one side. Better on some days. Pain killers don’t help, heating pad works best. Stretches help somewhat.
So while all this is going on some of you may have read my posts about other stress: conflict with my son, grief over my friend who was in hospice. She passed last week.
Problem is I lost my rheumy in June to another practice before all this happened. We had worked together successfully through a flare last summer and a pause and slower taper this January when my friend had her severe accident.
When my rheumy left I was at 9 and ready to go 8 as the next step. We had agreed on a taper of 1 mg every 6 weeks.
So when it was time to refill pred my GP had to do it. In Trying to figure out my pain she ordered a hip and lower back X-ray, showed osteoarthritis. She prescribed muscle relaxers for the shoulder and neck pain which didn’t do anything and an antidepressant. Covid has me hesitant about physical therapy. To me the pain seems like a combination of bad posture and possible myofascial pain syndrome. Maybe some PMR, who knows??!
Problem is when she refilled my 5 and 1 mg pred, she prescribed the refill to follow the taper plan my rheumy and I agreed on back in June. Which says I should be at 6 mg now, not 13mg!! I just don’t have the energy or stamina to go through this struggle with yet another doctor. I had hoped she would just refill the old prescription of 210 1 mg pills but she only prescribed 42.
I had messaged her about the refill, she then asked what dose I was on now and sent me the taper plan and asked me if this was the one I had agreed to. I messaged her back that it was, with some allowances flares, and explaining the stress that probably caused the flare and my blood markers to rise: Covid, conflict with my son, my friend in hospice and passing, the death of my car, financial stress, etc. etc
I’m so panicked about not being able to have enough pred, and don’t know what to do about the pain I still have and about tapering.
The GP has seemed like she was open to listening on other issues, but she also had said PMR affects the joints, not muscles. The doctors are all under stress because of Covid, but I feel like I’m at the end of my rope. How to cope, not up to trying to educate another doctor.
I have a phone appointment with her on Monday and this will come up. I’m losing sleep. The anxiety is so bad I start to panic when I get a message from her office. I had two horrible rheumys before I found a good one. The first one actually fired me from his practice when I didn’t follow his plan, even yelling at me.