Thank you so much everyone for your kind messages about my friend. She’s been moved to a rehab facility and is making some very slow progress. Can’t talk or breathe on her own yet.
Please excuse this long message!
I texted my rheumy yesterday about my stress and symptoms and my friend, and I asked to pause and slow the tapering for now.
She replied today:
“I’m sorry about your friend and the stress you’re going through. You can slow the prednisone taper. Hopefully we can make progress with lower prednisone dose over the next few months due to associated side effects “.
“You should be on 8 mg a day now. “
“You can reduce by 1mg every 6 weeks.”
I saw her 4 weeks ago when I had started tapering from 10 to 9. I started having trouble half way through. I stopped tapering in week 3 of the 4 week taper and went back to 10. I’ve been at 10 for the past week. So there’s a problem if she thinks I should be at 8 now. It’s only been a month since I saw her. That would be a reduction of 2mg in a month.
I asked her if I could taper by .5 instead of 1mg. She still wants me to taper by 1. mg, but extended the time period to 6 weeks.
She had wanted me to be at 5.mg when I see her again in the middle of May. That’s only 3 months from now to go from 10 where I am now to 5, seems impossible and stressful to me.
Maybe she isn’t being as rigid as I’m interpreting her but this is really stressing me out and I don’t need more stress!
Should I message her back that it’s only been a month since I saw her and that I couldn’t have gone down from 10 to 8 mg in that time? Or just let this go. Maybe she’s just so busy she doesn’t know it’s only been a month
Should I go back now to where I was in the taper, week three, without starting the taper all over again? I will have been back up to 10 for a week on Friday. I’m still having some pain but Tylenol usually, not always helps.
I don’t want to make this whole thing worse by causing unnecessary conflict but I don’t want to worry myself sick for three months until I see her again and I’m not where she wants me to be.
I’m having poor vision from a worsening cataract that’s also stressful, difficult to read or draw. My escapes.
Thanks forum friends. I’m grateful for this forum.