Update on set back. Day 3. : 3000 mg prednisone... - PMRGCAuk

PMRGCAuk

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Update on set back. Day 3.

alvertta profile image
12 Replies

3000 mg prednisone over 3 days ..done. Now just wait and see. Or not see. So far the eye seems the same today.

Have to say the medical teams at the OWEN Sound hospital in Ontario Canada, are wonderful. Efficient. Caring. Respectful.

Love our Ontario medicine.

At 8am my rheumatologist called me as a result of a message I left last night at 11 pm on her office line. On vacation. Checking vm. She was gobsmacked

“So unfair. You did all you were supposed to do.” So supportive. What a great doctor.

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alvertta
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12 Replies
SheffieldJane profile image
SheffieldJane

I am so glad that you feel in safe, caring, efficient hands. You have been astoundingly brave, 1000mgs must make you feel completely deranged. There are an awful lot of healing vibes flowing your way alvertta, from your forum family.

PMRpro profile image
PMRproAmbassador

Still no more I can say than all the best.

More exposure of some of the cases recently does seem called for. But yours is particularly unfair.

powerwalk profile image
powerwalk

Oh all good wishes for you!!! X

Carriemetz profile image
Carriemetz

So glad you have wonderful Canadian care. You’re inspirationally brave. Thinking of you. Love, Carrie

EdithWales profile image
EdithWales

🌹🏴󠁧󠁢󠁷󠁬󠁳󠁿❤️x

So hoping for the best for you. 🤗

Marilyn1959 profile image
Marilyn1959

Any further update? Thinking of you and sending virtual hugs ♥️♥️♥️♥️

alvertta profile image
alvertta in reply toMarilyn1959

Waiting. That’s all I can do. Thanks!!

Smokygirl profile image
Smokygirl

💐💐💐♥️♥️

Robinsnest72 profile image
Robinsnest72

I also live in Owen Sound Ont. where did you find a female rhuemy? Did I read this right 3000mg of prednisone

PMRpro profile image
PMRproAmbassador in reply toRobinsnest72

It is a standard pulse therapy protocol in GCA.

alvertta profile image
alvertta in reply toRobinsnest72

Yes 1000 per day for three days. Blast that GCA. THEN wait. Taking 50 now for one month. My rheumatologist is in Milton. Dr Yan Liu. I found her thru my family dr. I also see dr young ..neurologist in Owen Sound. Find him quite vague. And unreliable. Says he will call and follow up. Then forgets. Dr Liu is on it.

When I originally had CGA in October 2018 exactly same protocol.

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