I’m having a telephone consultation with my GP today and am considering asking her for a referral to a rheumatologist (can go private) From reading previous posts there seem to be a variety of experiences.
I feel that since the initial response to 15mg of Pred back last December I’ve been yo-yoing trying to control the pain. I managed to get to 11mg back in April, almost at a tolerable level but after a flare of diverticulitis have gone back up to 15mg for almost a month but the pain in my hips, buttocks and legs is still dreadful.
I’m going to ask the GP if I can have a blood test but generally feel this going up and down in dose can’t be good , particularly if I can’t get stable at a dose that keeps things manageable. I’m also wondering if a referral to an empathetic rheumatologist would be a good thing . I’d be grateful if anyone has any recommendations for the Surrey,London Home Counties area. Thanks,
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SurreyFlower
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I can recommend Dr Pamela Mangat. I see her at the Royal Free which is probably a bit far for you to travel, but she also has a private clinic in central London.
He knows his stuff and is empathic and reassuring. I got through 3 other Rheumy's before finding him and finally feeling he was on my wavelength. I think he now gets all the "difficult" cases (like me) and so has a lot of experience!
I have been signed off for a while now because I have spent the last 2 years having 4 replacement surgeries, but may need a referral soon to see hime again.
By the way, he works for NHS at St. Peter's Hospital, Ashford and privately at The Runnymeade Hospital. The NHS service there is very good.
Yes, thank you, although the PMR keeps interfering with my rehab/exercise regime- I've had to increase the Pred. 3 times so far. So annoying! In much less pain however.
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