Auntie Bees PMR/ GCA and Chronic Pain Sufferers A... - PMRGCAuk

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Auntie Bees PMR/ GCA and Chronic Pain Sufferers Advent Calendar . Dec 1st . Your Making a List , Your Checking it Twice . Festive Pacing.

Blearyeyed profile image
Blearyeyed
β€’89 Replies

So , it's December the 1st !

The season of overindulgence and intermittent Flares is upon us , and I know many of you , even if you used to be the Life and Soul of the Christmas Office Party , woke up this morning and greeted the calendar with a weary sigh.

The ' I musts ' and ' I have to's' have started creeping into you psyche and your joints are itching just a little more at the thought of it.

Well don't dismay , don't give up on Santa yet , as Auntie Bee has decided to give you : A little gift , a tip a day ,

In the hope to keep Festive flares at bay.

( My inner Grinch has clearly been exposed I'm already Rhyming like Dr. Seuss!!😨).

Most days efforts , like my OH , will be short and sweet πŸ˜‹πŸ˜‚πŸ˜‚ Love you , Mr. Bee 😘

But Day 1 , we start as we mean to go on , it takes a bit more jovial explanation , because just like the Big Man in the red suit : We're making a list and checking it twice , to stay far from Naughty and only do Nice! ( Off again!!)

So here's the Rules , or as Jack Sparrow would say , " Them 's more guidelines !"

Spend today , or some time soon , writing a list including on it everything you Think you Need or Have to do ( including invitations) to make the Season Merry and Bright.

Do this sitting in a comfy chair with a warming brew , a sweet treat , and an enjoyable film or music on in the background.

Put to one side . Nap or enjoy another brew.

Now , go back and check that list again .

Anything that is on it that you can delegate to someone else , call them now and do it. This is everything from dragging out your crumbling boxes of Christmassy trinkets from the loft , putting 10 million fairy lights around your house , delivering and picking up endless goodies and presents , lifts , Grotto building , Costume making , and even baking and preparing veg on the Big Day.

If it can be done by someone else , pass it on .

Having a Chronic Condition means learning a ' New Normal' and perhaps this year is the year that you finally get around to passing the Mantle of Christmas Tradition Creator to the generation of people below you and just sit back and enjoy it yourself. Believe me , you have done a great job , you've earned this unexpected retirement !

Next , if it isn't something that really needs to be done , or you really want to do , do what you have secretly wished you could do for years and cross it off your list.

They are all naughties.

If just the thought of them brings on Fatigue it's got to go , or you'll end up being on your back before Christmas Eve. The only things in your Christmas Stocking will be Coal , an extra supply of Pred and some heavy duty joint lubricant that will compete with the tree for spreading the scent of pine and block out the flavour of the Festive Beast for all that gather around you.

Umm! Mummy's Turkey was kindly delivered to you with the essence of Volatrol Gel this season!

So , be brutal , like Santa , if it's not good for you ( in body or soul) it does not make the cut.

All those trips up ladders that you don't want to do but the family expect a good show , if someone else can't take the time to do it for you , sorry all , it has to go.

Even if your wife or husband always delegate these jobs to you to help spread the Christmas spirit they enjoy , as much as you love them , be honest ,and let them know , they will need to find a new , fully functioning Elf to assist them this year , or it just can't happen.

Mad dashes across Hill and Vale to delivery those gifts , or around various shops both Day and Night , to get that perfect present , or because little Johnnie wants it , be like Elsa and , " Let it go!"

If you can get it online , do it , if it's elusive , stick a voucher card on a selection box instead ( believe it or not that is the perfect gift for both young and old) and leave Santa and his Merry Men at the Post Office to do the rest.

Hate writing endless cards , stop it. Don't want to go to that thing every year held by the people that make you want to kill them with Christmas wrappings , Don't go .

Unnecessary Christmas cleaning of cupboards , forgotten drawers , under beds , Be gone! Really , if you're Everyday food could live in a cupboard for the rest of the year , your Festive food won't mind .

No need for painful concerts that you feel you must attend ( although , sorry , your Grandchildrens Nativity may have to beat the cut unless you are ill on the day) , no more baking 64009 mince pies , just bake for you if you want too. Gone! Gone! Gone!

If two things clash in a day , you choose the one thing you really want to do that day , and gently decline the rest.

By the end of a very productive day , checking your list while sitting on your bum , you will have transformed Christmas into something you can once again enjoy and cope with relatively Pain and Stress Free.

Do not be tempted or cajoled to waiver . Never add something back on .

If a person can't take no for an answer , send a nice email first and hold your own. If they look grumpy by being forced to take over practical things , just remember , you did too once , way back when , and look what an amazing little Christmas Elf you eventually turned out to be. It's wrong not to share the Pain .... I mean Fun , and they have had their Festive Training neglected long enough.

This ' New Christmas Normal' should fill you with happiness not with Festive Gloom ( after a few sad, accepting sighs , of course ) because what you have left is what you would really have chosen to do from the very beginning . That is , if the burden of Keeping up with Christmas Have To's hadn't sneeked into your life over many , many years and zapped the childish fun out if it.

It doesn't mean you are doing nothing .

You can still enjoy Christmas Dinner with the Family but you aren't preparing every single spot of it. If you love making cards and sending them you plan it in its the stuff you don't like that goes instead. You love a Christmas Market , just enjoy it , don't dash around it getting strangled by an ever growing Christmas List . Candlelit Carols , rest all day , grab a blanket , you can make it ! because you haven't tried to fit in a full Festive assault course before.

Christmas , Real Christmas , will finally have come to your Town.

And that's the point in the first and longest Advent Tip on Auntie Bee's Calendar .

For once , don't think of your PMR / GCA and other Chronic Illness issues as being a plague on all your houses and ruining the fun.

When it comes to Big Days and Big Events , it may have actually started to become your friend. Teaching you a " New Normal " for Life . Allowing you to learn you can slow down and pick and choose . That Balance that you learn now can help you enjoy Life , and especially Christmas or your own Winter Festival of Choice , for years to come , long after PMR , GCA or any Chronic Illness has waved goodbye and shut the door.

So , I hope this tip will be the first to help you gain a Festive Grin , especially if you were already feeling worn out by the thought of the weeks to come.

And in the days ahead , I hope you pop in and see some shorter , sweeter , candy cane flavoured nuggets of knowledge from the years of festive training endured by Auntie Bee, and these will help us all survive Christmas Flare free !

Now where is that Marshmallow!

P.S. The photo was kindly donated by Grandma ( my youngest daughter) of her cheery crochet creations , and I will add a little cuteness each day because every calendar needs a suprise behind the door.

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Blearyeyed profile image
Blearyeyed
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89 Replies
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scats profile image
scats

You're a wonder Bee, what a lovely idea, an advent calendar. I look forward to tomorrow's tip.

Blearyeyed profile image
Blearyeyedβ€’ in reply toscats

Thanks it will definitely be shorter and sweeter , it's just the pacing thing takes a bit of effort , so we can all start as we mean to go on!

scats profile image
scatsβ€’ in reply toBlearyeyed

I've been saying no for years, a real Mrs Scrooge!

Cyclegirl54 profile image
Cyclegirl54β€’ in reply toscats

Sounds like me! πŸ˜‚

Blearyeyed profile image
Blearyeyedβ€’ in reply toCyclegirl54

That's why you have such a lovely , happy smiling face on your Profile Picture , the silver linings of the the ' New Normal' and a more relaxing Life , even at ChristmasπŸ˜‹πŸ˜πŸ˜˜

Cyclegirl54 profile image
Cyclegirl54β€’ in reply toBlearyeyed

Oh thank you. 🌸

PMRpro profile image
PMRproAmbassador

Love it - even if I am the Grinch when it comes to xmas...

This year even OH has decided to cut back (on what he saddles me with) - if we haven't got your email address or you are really special - you escape The Letter (I first said it about 5 years ago ...)

Blearyeyed profile image
Blearyeyedβ€’ in reply toPMRpro

If anytime is the time to Channel your Inner Grinch , having PMR, GCA or any Chronic Condition is the time to do it.

Plus , being a Grinch or a Scrooge isn't a bad thing , they both taught us the way to enjoy Christmas in the end.

My lot , assume my Black Bah Humbug Santa Hat is ironic , it might have been once , it's a morning statement of my daily mood now , and warns unsuspecting revellers to keep away!πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚

Blearyeyed profile image
Blearyeyedβ€’ in reply toPMRpro

As an aside , I would love to know why , out of all the words to do with PMR or Chronic Illness included in my post , the related tags decided to choose ' lubricant ' as the only one it highlighted!!πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

I have even tried to change it to something more relevant , added Chronic Pain , Stress etc., Pressed edit , it popped up again !

Perhaps the Website feels a bit achy and it needs some added oiling ?!!πŸ˜‹

β€’ in reply toBlearyeyed

🀣🀣🀣

PMRpro profile image
PMRproAmbassadorβ€’ in reply toBlearyeyed

I have already pointed out the deficiencies of their software in this respect! I also pointed out I assume that is why their "People like me" is the biggest load of rubbish you can imagine ...

Blearyeyed profile image
Blearyeyedβ€’ in reply toPMRpro

Well if you ever need a funny example to prove your point in the future " Lubricant" may just fit the bill! Curiouser and curiouser said Pro!πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜˜

Smokygirl profile image
Smokygirlβ€’ in reply toBlearyeyed

🀣🀣🀣

Sailormo profile image
Sailormo

Hi you are so right,I'm having a bad flare right now,had bad throat didnt get to the gp when I should have,I've had to put my pred up 11mg but it's working, health team been visiting me at home so I didnt have to go into hospital. ILOVE your message, you have got it just right.S Mo.

Blearyeyed profile image
Blearyeyedβ€’ in reply toSailormo

So sorry you are under the weather . Glad I wrote this just at the right time for you , Festive Pacing needs to be added to your prescription.

Hope you feel better soon x

Tick

Tick

Tick ditto.

I didn't get round to pass g on my older sister and her family presents despite seeing each other several times... So that lot is sorted. The parking fine I got for £60 takes care of the rest. 😭

Blearyeyed profile image
Blearyeyedβ€’ in reply to

Ouch!!! How did that happen , plus brain fog is now wickedly making me imagine that the gift you gave them in their Christmas Card was the invoice for your Parking Fine , saying,

" Please pay this!" written on it in glittery crayon!πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

Ah! The Joys of Christmas Parking , that might have to become another advent door!

β€’ in reply toBlearyeyed

Oh I wish. My own fault so I have to take it on the chin. Then again my chin doesn't hurt so perhaps I will decide on my metaphor later.

I used to make all my paper and decorate with glitter pens etc when all the kids were young. Perhaps next year.... πŸŽ‰πŸŽŠπŸ˜Š

Blearyeyed profile image
Blearyeyedβ€’ in reply to

Only if it's what you love , if you don't want to stash the glitter in an uncleaned drawer , it's the Theory of Festive Pacing at workπŸ˜‹πŸ˜‚πŸ˜‚πŸ˜˜

PMRCanada profile image
PMRCanada

Thanks for your wonderful, practical and creative post/suggestions.

I feel so much more able to tackle the holidays this year, but have followed last year’s pattern:

a) make a pot of soup and invite the kids and grandkids to decorate the tree and house (was supposed to be today but huge ice storm, so that will happen next Sunday)

b) do as much of my shopping online, avoiding the hussle and hassle of finding a parking spot and crowds of shoppers in the store

c) make the simplest of holiday sweets recipes, baking every second day

d) host an open house and comfort and joy pot luck where guests bring their favourite comfort food to add to the feast

This worked well for me, and I some reflect what you’ve already shared, but I’m always open to new ideas....so can’t wait to read your upcoming posts. Your writing is a real treat and brings on a grin, even a giggle at times. Never change one thing about you Aunt Bee.

Blearyeyed profile image
Blearyeyedβ€’ in reply toPMRCanada

Oh, thank you so much , that's so kind.

I must admit you have it spot on and you really got to grips with a bit of Perfect Festive Pacing last year , it mirrors my own changes over the years , and your suggestions are things that I was going to include in the weeks ahead.

So , look out for a nod to what PMR Canada does when I pop on doors about food ideas and the rest , as I would love to let people know through the posts the ideas I have heard from yourself, and other members too.

You have done really well creating balance all along and getting to grips with the " New Normal " , so don't you ever change too , big hugs xx

PMRCanada profile image
PMRCanadaβ€’ in reply toBlearyeyed

Hope I didn’t spoil the advent surprises in the coming days....not my intention. β€˜β€˜Tis the season for giving and sharing, and in that light I decided to share my β€œrecipe” for a New Normal Christmas.

I’ll be awaiting your upcoming tips and tricks during the holiday season.

πŸŽ…πŸ»πŸ€ΆπŸπŸŽ„β˜ƒοΈβ„οΈ

Blearyeyed profile image
Blearyeyedβ€’ in reply toPMRCanada

Absolutely not it was a gift , not a spoiler . You did exactly what I was hoping for , adding in your own top tips to make life even easier this Christmas for all , including Me as I write the posts , so I hope you keep leaving a reply when you can. Thanks so much x

Louisepenygraig profile image
Louisepenygraig

Christmas is just about sorted for me. My son in law put the tree up today and lots of lights outside. My daughter and grandchildren will probably do the rest of the decorating. For Christmas itself my husband and i will be staying with our other daughter in Jersey City. We don't arrive until the 22nd so doubt there'll be time to get roped into much there. Just the little matter of presents which will probably come via courtesy of Amazon even though I'm not sure I approve of them!

Blearyeyed profile image
Blearyeyedβ€’ in reply toLouisepenygraig

Needs must when the Reindeer flies !!

Sometimes necessity steps in.

Sounds like you are going to have an amazing trip , just remember to Pace yourself in sightseeing and get plenty of rest before and after travel too , Holiday and Festive Pacing tips rolled into one.

Have a wonderful time , oh , now your family have finished putting up your decorations on the Mainland do you think they'd pop over the bridge and help with mine!πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚

Big hugs xxx

Louisepenygraig profile image
Louisepenygraigβ€’ in reply toBlearyeyed

I'm afraid it's only the tree plus lights so far. I can ask when they've done the rest! We're travelling out to US on the Queen Mary so hoping for plenty of rest and relaxation then! We've been over to Jersey City enough now that I do very little sight seeing but do go out a fair bit. Hoping for dry sunny weather but not too cold. Its far enough South for the sun to have some heat in it even when the air temperature is low

Blearyeyed profile image
Blearyeyedβ€’ in reply toLouisepenygraig

Amazing , yes the cruise ship certainly does seem to open up new distant adventures for Chronic Pain Sufferers that they thought might be lost to them when they first started learning the ropes.

I'm desparate to try one myself , Bonne Voyage xxx

β€’ in reply toBlearyeyed

Mine will be Iceland or Norway cruise to see the norther lights. But I might see if I can rent a 4 wheeler to go off roading. That be imaginary until 2020 something., πŸ”οΈπŸ›³οΈπŸŒ¨οΈπŸŒˆ

Yellowbluebell profile image
Yellowbluebellβ€’ in reply to

We plan to see the northern lights for our 30th wedding anniversary next july.

Janann25 profile image
Janann25β€’ in reply toBlearyeyed

Yes, cruising is a wonderful choice, not only for Chronic Pain Sufferers but also for Singles. I was diagnosed with PMR two years ago, just one year after my husband passed away. So, as I have no family, my recent Christmases have been both painful and lonely. So, this year I'm cruising with a friend to Norway, Denmark, the Netherlands etc. I've only bought presents for really close friends but will send cards as usual. So, apart from deciding what clothes to take, that's Christmas sorted!! It will still be a bittersweet experience - and I sometimes feel guilty at turning my back on the usual "festivities" but if there's one thing I've learnt from this illness it's that sometimes we just have to do what's right for us at the time.

Cyclegirl54 profile image
Cyclegirl54β€’ in reply toJanann25

Have a lovely time 🌸

Blearyeyed profile image
Blearyeyedβ€’ in reply toJanann25

What a great way of putting it I hope you don't mind if I quote you behind another Advent door.

Enjoy that break away guilt free because you are right , with your illness you do often need to give yourself the biggest gift of all and do what is right for you xx

Janann25 profile image
Janann25β€’ in reply toBlearyeyed

Thank you for your reply - why are we β€œblessed” so often with this thing called GUILTπŸ˜‰

JanboC profile image
JanboCβ€’ in reply toJanann25

My OH and I are cruising over Christmas too. Cyrprus, Turkey, Greece and Israel. Gave up on Christmas a couple of years ago after inviting family and friends for Christmas day and Boxing day only to see them all leave after eating to go and visit others and leaving me with all the clearing up etc. We were never invited to theirs, so I thought, sod it!!, I am not doing this anymore. Much more relaxing and nothing to do apart from eat, drink and be merry! Enjoy your cruise.

Janann25 profile image
Janann25β€’ in reply toJanboC

Husband and I cruised many times but nI ver at Christmas - so looking forward to it and I know he would have loved it too πŸ’•.

Blearyeyed profile image
Blearyeyedβ€’ in reply toJanboC

Ah! You had become the go to Christmas Creator !

Glad that you are giving yourself a well earned Christmas gift and are going to enjoy a bit of pampering for a change.

Just out of interest , what were your usual guests reactions when you told them what you were doing?

JanboC profile image
JanboCβ€’ in reply toBlearyeyed

They were gobsmacked, told me that I was being selfish and uncaring. So I just replied "so what do you call popping in, eating and drinking my food and drink, then just up and leaving to go elsewhere?" That shut them up lol. They all know now that come hell or high water we will not be here over Christmas. With 8 children between us , 15 grandchildren and 4 great grandchildren it's heaven to be on our own. x

Yellowbluebell profile image
Yellowbluebellβ€’ in reply toLouisepenygraig

Sounds like you have it sortedx

Louisepenygraig profile image
Louisepenygraigβ€’ in reply toYellowbluebell

I just have to remember that my youngest grandson has requested that I make a Christmas cake before I go. The one his mum makes is liberally soaked in booze and he doesn't like it. I've got an easy fruit cake recipe I can use and I'm sure my daughter can add the marzipan and icing nearer the time

β€’ in reply toLouisepenygraig

Has he tried it with a lovely lump of cheddar. Yum yum.

Louisepenygraig profile image
Louisepenygraigβ€’ in reply to

That might be a bit adventurous for him!

β€’ in reply toLouisepenygraig

πŸ˜‚πŸ˜‚πŸ˜‚ I miss my mums Xmas cake. She made it in September and kept it in an airtight container under the bed. No marzipan so perfect for me. πŸ‘Œ

Blearyeyed profile image
Blearyeyedβ€’ in reply to

I made one last year , it's been so well fed that Santa would get a ticket for Drunk in charge of a Sleigh with one crumb of it!πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚ Hic!

Highlandtiger profile image
Highlandtigerβ€’ in reply to

I miss my mum's Xmas cake too. And she didn’t put marzipan on it either. It’s the invention of the devil! 😈

β€’ in reply toHighlandtiger

I hear you.... 🀣🀣🀣

Blearyeyed profile image
Blearyeyedβ€’ in reply toLouisepenygraig

You could leave him a pack of icing , marzipan , rolling pin and some coloured icing pens and he could have a bit of Christmas Kitchen fun courtesy of Grandma . Bet he would love it , if he does it get him to take a photo of his efforts so we can see it.

My imagination is racing ..... Zombie Christmas cake ??!πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚

Louisepenygraig profile image
Louisepenygraigβ€’ in reply toBlearyeyed

I'd wondered about something like that. He's only 9 but he's really into making biscuits now. When he started there would be lots of mini meltdowns when he got to bits that were too hard for him but now he generally just gets on with it. I used to have a copy of the WI book of biscuits which I thought I'd got rid of years ago. Turned out my daughter had it and now it's his.

Blearyeyed profile image
Blearyeyedβ€’ in reply toLouisepenygraig

It will keep him occupied at the kitchen table for a bit while your daughter is busy getting on with something else. I think he'll love you for it!

Yellowbluebell profile image
Yellowbluebellβ€’ in reply toLouisepenygraig

Our grandson likes the boozey cake so we have to refrain from loading the cake with alcohol !!

Smokygirl profile image
Smokygirl

Wonderful! 😘😘😘

Marilyn1959 profile image
Marilyn1959

It is not only about pacing ourselves, but also being aware of the impact delegating has on others and perhaps lowering your expectations or reducing your wishlist into necessities only.

When I think of all the additional tasks my OH has had due to my poor health this year, I think he could do with less on his plate as well. Mindful of this I decided we wouldn't have icicle lights all round the outside our home this year. He is really quite dodgy on a ladder these days!

I usually go nuts indoors with lights, a Christmas tree in each of three rooms etc, however just have the one this year in the lounge. So generally scaling things back.

I am also ordering all presents on line and wrapping them as they arrive. I made the mistake of trying to wrap them in one go last year - BIG MISTAKE! Little and often rules!

Blearyeyed profile image
Blearyeyedβ€’ in reply toMarilyn1959

Exactly , you sound very similar to Me in the " Old Normal" days , especially a tree in various rooms .

Scaling back and keeping things Small was a gift for good old Mr. Bee as well as Me , especially as like You I was conscious that he also had added everyday jobs to do since I had become ill. Extra Christmas tasks was something I didn't want to give him to do unless absolutely necessary.

I share out pre Christmas jobs to those that offer to help but give them jobs that they enjoy doing , or that will make them feel that they are adding to their Christmas feeling of giving too. "Grandma " clearly loves Art and decorating and was itching to get her hands on decorating so that was easy. Mr. Bee finds online shopping as much of a godsend as Me , especially if I choose delivery , and your wrapping tip is brilliant , so expect to see yourself get a mention in tomorrows Advent offering on gift giving .

Spittal9 profile image
Spittal9

Great advice. We just need to remember it now lol. For the first time ever we are going away for Christmas. Just the two of us and the dog to a lodge in the Scottish highlands. Can’t wait! No more drama from Christmas guests. We’ve got our Christmas pyjamas ready and we’re thinking of spending the whole of Christmas Day on them. Now that’s what you call pacing yourself lol.

Blearyeyed profile image
Blearyeyedβ€’ in reply toSpittal9

Have you been to peeking through my windows at Christmas Spittal ?πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚

For the last few years we have indulged in Christmas pyjama wearing along with the addition of a Christmas jumper and a cracker hat.

It feels gloriously naughty but very nice!

Enjoy the wonder of your stress free break away , you may never go back !

Cyclegirl54 profile image
Cyclegirl54β€’ in reply toSpittal9

That sounds very good!🌸

Spittal9 profile image
Spittal9

Sounds very naughty but also very nice too. Can’t wait!

Pollypuds profile image
Pollypuds

πŸ™ŒπŸ’•

LemonZest11 profile image
LemonZest11

Oh that made me laugh all the way from Downunder to you!! I adore Christmas, going to give it another shot. We swelter here with a boiling day and seafood everywhere just waiting to give us food poisoning. But it never happens, haha. I put my lights and tree up today, glad that is done. I have a bit more to do but generally I’m feeling excited. We have a family concert ... 9 grandkids under 10 and their parents, it is pretty hilarious!! Thanks again for your looooong (but I made it to the end) post, made me smile, giggle and feel part of a funny and familiar PMR family.

maria40 profile image
maria40

Made my Christmas declaration this morning: I'm not making mincemeat, Christmas cake or anything else I don't really like. My daughter looked rather nonplussed -- I'm going to her for Christmas lunch and they are coming to me on Boxing Day. Bet she wonders what on earth I'm going to give them. So do I, but I'm not losing sleep over it. Couple of hospital appointments in the week before Christmas so can use that an excuse for resorting to M&S preprepared food; a little tweaking an no one will know.

Blearyeyed profile image
Blearyeyedβ€’ in reply tomaria40

Wonderful , Up the PMR Christmas Freedom party!!!

I don't know what it says about my mind , but I skimmed your message and read Tweaking as Twerking , and suddenly thought your plan for a gift was to fill up on gin and give you grandchildren a suprising little dance show for Christmas. πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚

It gave more such a titter , thanks for joining in the fun xx

Just about to add on a tiny bit of Fun for Day 2 , a photo and a where is that quiz!

The winter nights just fly by in my house πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜˜

maria40 profile image
maria40β€’ in reply toBlearyeyed

Gin and PMR? Could certainly be surprising.

Blearyeyed profile image
Blearyeyedβ€’ in reply tomaria40

πŸ˜˜πŸ˜˜πŸ˜πŸ˜‹

Blearyeyed profile image
Blearyeyedβ€’ in reply tomaria40

Just noticed that you said you were wondering what you will give everyone , no fear the day of tips on Fatigue and Stress free gift giving us here , believe it or not it could save you a lot of time , just thought I'd let you know xxx

maria40 profile image
maria40β€’ in reply toBlearyeyed

Actually when I said that I was thinking more about food. Had a burst of energy this morning and got most of what I needed on the present list, a book for daughter in Norway online, for grandson also books plus an 'adopt an orang utan' scheme (he's very environmentally aware) and stuff for his Mum from TK Maxx ,

Tomorrow's challenge is getting PMR legs into tights so I can wear a dress to end of term concert, may have to enlist daughter's help.πŸ™„

Blearyeyed profile image
Blearyeyedβ€’ in reply tomaria40

Wrap up warm , and take a cushion , and a hot drink in a travel cup if you have one , believe me , it's worth it!

Well done and take care with your tights challenge , xxx

Blearyeyed profile image
Blearyeyedβ€’ in reply tomaria40

There is a tip or two for helping to do stress free food shopping on the post for you , hope it helps xxx

β€’ in reply toBlearyeyed

πŸ˜‚πŸ˜‚πŸ˜‚ I am going to try and remember to twerk on Xmas day at 10am. It'll be an improvement on my football manager half time team talk I had to do for a game. Though hopefully the twerking won't be on video. Unlike my brother and sister doing a robot dance. I thought they were taking the mickey out of me. πŸ˜‰

Blearyeyed profile image
Blearyeyedβ€’ in reply to

Oh No , Please video it , if anything could cheer us all up on Christmas Day it would be getting to spend 15 minutes of Fun watching you and the pooch twerking in your santa hats!

Just loaded up day 2 , there's a teeny quiz , enjoy!

Spittal9 profile image
Spittal9β€’ in reply tomaria40

It’ll be Marks and Spencer food all the way for us!

teesher profile image
teesher

M&S do a great Xmas cake for a fiver and lovely mince pies. Tweak away. :-)

stiff19 profile image
stiff19

Fantastic πŸ‘ congratulate yourself granddaughter πŸ‘πŸ™ŒπŸ»

Blearyeyed profile image
Blearyeyedβ€’ in reply tostiff19

Have you seen the funny snowman photo on today's post , I think you deserve a giggle. Take care

stiff19 profile image
stiff19β€’ in reply toBlearyeyed

Sure gave a giggle 🀭 I look forward to the rest πŸ™πŸ™ŒπŸ»

Great spirit lifter for Xmas πŸŽ…πŸΌ

Suet3942 profile image
Suet3942

What a great post. Bee for pm!

Blearyeyed profile image
Blearyeyedβ€’ in reply toSuet3942

Oh blimey , should I start my Campaign now , Marshmallows , mince pies and mini snowmen for All , and no mention of the dreaded B word!

Vote Bee , because at least she admits she's a fruitcake!πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

tangocharlie profile image
tangocharlie

Excellent tips. I couldn't sleep last night (ah the joys of Pred, fatigue but can't sleep - huh!?) so got up and grabbed a piece of paper and wrote the heading 'Everything that is going on my head right now'. Once I'd scribbled a whole page like a Mind map, went back to bed and slept peacefully. Next step will be to take your approach and see what can be delegated or eliminated. Just writing it all down seems to have helped.

Blearyeyed profile image
Blearyeyedβ€’ in reply totangocharlie

Just wait you will have another peaceful night's sleep after you go through the enjoyment of crossing stuff off or passing it on and see the small enjoyable thing you are left with.

Hope the other advent posts will be equally good at helping you beat the Insomnia Fatigue πŸ˜‹πŸ˜˜πŸ˜

Dewdrop456 profile image
Dewdrop456

Thank you for taking so much time and trouble with this.

It is so very difficult to change and think of the Christmas jobs in a different way.

I had 5 children so you can imagine my exhaustion by Christmas Day even before PMR !!!

I will definitely try to follow some of your tips.

Thanks Blearyeyed.

Blearyeyed profile image
Blearyeyedβ€’ in reply toDewdrop456

It is hard , I've been practising this technique for a few years and when I first started those slightly sad accepting sighs happened more often. As a Family though it's become a transformation that everybody enjoys , especially mucking in with decorating and making meals , so the guilt soon passed into a new Christmas pleasure.

I only have two girls , and one husband ( that makes 2 children!πŸ˜‹) that was exhausting enough pre GCA so I salute your energy xx

Dewdrop456 profile image
Dewdrop456

Last year I had to work a lot of overtime as a colleague had to have an operation.So instead of decorating 4 rooms etc etc I left all the decorations in the loft , bought a tree and some Berry lights and decorated the tree with lots of Robins.It looked lovely. Put some Holly on the window sill and finished it all on Christmas Eve just in time. It was my easiest effort ever.

Very tempted to do the same this year !

Blearyeyed profile image
Blearyeyedβ€’ in reply toDewdrop456

That sounds great , if you are up to it go for it xx

piggypink profile image
piggypink

Brilliant Auntie Bee. I don't feel so guilty now,after telling my family that I would be delegating xmas jobs. In fairness the boys and their wives and my hubby have already, firmly but politely, told me that I must not do everything, and instead of being my usual independant self , ask for help. Difficult , yes, but I'm learning

Love the cuties!!!

Lovely to see the sun during the weekend.

Best wishes to all xx

Blearyeyed profile image
Blearyeyedβ€’ in reply topiggypink

It's true the sadness and odd twinge of guilt goes quickly when you realise that you are just bringing in a new style of family fun that everybody ( including you!) can enjoy xx

More crochet festive cuties coming soon , although you might also like the photo of the snowman selfie on the post I put up today . Have a Merry one xx

I always go to my younger sisters for Xmas since our parents died. My responsibilities are bring Xmas pud and an extra delicious cheese board. If I am up to it I chop some veg. I used to be the potato masher for Xmas Dinner but I haven't got the strength in my hands and arms now. My sister makes sure I have my own bedroom so I can rest during the day if I need to. Especially when my brother comes with 3 young kids.

I have had these limited duties since a couple of years into fibro. I have been less than successful in completing them once or twice. For example, the dog attacked the Xmas pudding one year when I put the bag by the dog and nipped to the loo before driving. She ate over half an 8 person pudding in less than 5mins. Having got through a box, that sellophane and a plastic lid. I spent cash and time at the emergency vets on Xmas eve. πŸŽ„βŒšπŸ˜πŸΆ

Blearyeyed profile image
Blearyeyedβ€’ in reply to

I was giggling until I remembered the poisonous nature of dried fruit for dogs and heard about the vets.

You sound like you have an amazing sister though whom really understands about your needs and helps you join in on the fun.

β€’ in reply toBlearyeyed

Yes I am lucky and she is a compassionate empathic person as are her daughters.

Yes.. Raisins are supposed to be poison. It was funny and she was fine, though it can be kidney damage that is a later issue. But she enjoyed herself and didn't vom. She broke into the fridge one night and ate a block of cheese and head of celery, followed by 3 nectarines - obviously no idea of the eating order. I was on my hands and knees struggling round the kitchen floor looking for the stones and the 4th fruit. She snuffled me, I looked up and she had it in her mouth. It's obviously the early hours so we can forgive daft dog tales πŸ˜‰

Blearyeyed profile image
Blearyeyedβ€’ in reply to

πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

Don't know , sounds like the order I pick my food in from the plates set out after Christmas lunch , me and your pooch have a lot in common ( including the hair do!πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚).

Reminds me of one year at my Uncles house , when he came down stairs on Christmas morning to find an empty giant tin of Quality Street in the middle of his two cats and dogs .

The funniest thing was , they had eaten all the chocolates but left all the soggy wrappers.

Again , poison to pets , but they didn't care but I can remember coming down to hear him giving them all a ticking off , and them sitting , heads guiltily drooped, in the middle of the carnage with him shouting , ' I could curse you with a trip to the vets for eating my strawberry creams alone !' 😁😁😁😁

β€’ in reply toBlearyeyed

πŸ˜‚πŸ€£πŸ˜‚

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