Hello to everyone concerned with neuropathy symptoms. I had an appointment with a neurologist/physiatrist last week to do a more comprehensive nerve conduction study and an EMG. This doctor has been reluctant to diagnose peripheral neuropathy, and I feel fortunate to have had the extensive tests to be sure of the diagnosis. He tested both legs/feet and my right arm/hand. In the end he said the results do not indicate that I have peripheral neuropathy. I do have significant carpal tunnel syndrome in my left hand and mildly in my right that account for the numb and tingling hands and arms.. He also said arm and hand symptoms are not due to cervical spinal problems (MRI shows 3 cervical disks pressing “moderately” on my spinal cord). He also said that a ganglion cyst in my right ankle has caused nerve damage resulting in numbness and nerve symptoms there, and that pain in my left foot is due to musculoskeletal issues. I’ll get sent back to orthopedics for more treatment, possibly to remove the cyst and I don’t know what for my left foot/ankle.
I still have plenty of unexplained tingling in my legs and pelvic girdle area and my left foot. All these nerve issues popped up right about the same time as PMR. Maybe my internist will help me decode the results of these tests more...I don’t know. During my last appointment we argued about my prednisone dosage. I had increased back to 6 1/2 mg because, as usual, my PMR symptoms were becoming difficult after reducing to 4 mg. She was unhappy with that and argued I need to keep reducing regardless...that everyone with PMR says that, then suggested substituting methotrexate. I said I would rather take my chances with side effects from low dose prednisone, the 6.5 mg does work. My appointment ended just after she told me I can’t have neck surgery while I’m taking any prednisone. I don’t want neck surgery, and 2 specialists have said it’s not appropriate for me at this time. She agrees I should put it off as long as possible. I left with the realization that I have another doctor who doesn’t seem to believe in treating my PMR. I have already dumped my rheumatologist for that. We have a doctor shortage here and it’s not a big town. I can’t just keep looking for new doctors. This is such a big problem for me.