Diagnosed PMR by GP 7.8.19
Symptoms - extreme fatigue, appetite loss, apathy, jaw claudication, upper arm muscle pain / fatigue sometimes, severe calf muscle fatigue, lesser so thighs, could only stand for a couple of minutes ditto walking. After sitting, could no walk immediately after standing, had to wait for right leg to mobilise/ support me. NO shoulder or hip pain or headache
Both the blood indicators were very high: you will know what they are
Pred prescribed doses weekly as follows 30:40:35:30: & then 25 for 3 weeks till now.
Day 1 immediate regained energy. By day 2 pain / discomfort gone. Still up to today slight jaw claudication when chewing a lot.
Week 2 one blood indicator back to normal the other I think the C one had reduced by only 50% hence increase in Pred.
Rheumatologist says I have atypical PMR and good response to steroids. Not to worry about raised bloods as they can be misleading.
I realise from here and meeting others at the AGM that I was suffering less than many others and with fewer symptoms
His plan is to reduce to 20mg tomorrow for 3 weeks and reduce 3 weekly by 5mg up to 10mg and review with him mid November.
What do you all think?