Hi PMR experts. Hope you can help. I have an appointment to see GP on 11th July to discuss the results of my 1st DEXA Scan - some areas of osteopenia & some areas of osteoporosis - all in the hips (worse on the right), spine ok at the moment. I posted a bit about this a few weeks ago, so got some good advice from forum members then, but want to go into the consult with all my ducks in a row, so I’d be grateful if you could read my ramblings and let me know if I’m on the right track, a bit off the target, or just plain wrong - no offence will be taken 😜
Just as a quick reminder, I’m almost 61, female, retired from nursing January this year, had had a huge amount of stress in my life for many years, otherwise active, pretty fit and well, diagnosed PMR Nov 23rd 2017 after 3 weeks of symptoms. Started on 15mgs Pred straight away - good response. Tapered using standard method. Got to 8mgs in April and didn’t do well after a month on 8, so went back up to 10mgs for all of May. Started DSNS method this month going down by 0.5 mgs increments. I’ve done 3 weeks and apart from a couple of days where my mood went a bit low I’m no worse, so I’m looking at 4 days of this week taking 9.5mgs & 3 days 10mgs. Fingers crossed.
I found out at my scan that at I’m in the high risk category for osteoporosis (early menopause, parents both had NOF fractures, I’ve had a few broken bones in adult life [secondary to high risk sport though!] , on steroids obviously). Wasn’t put on bone protection when diagnosed, but started taking Osteocare 2 tablets a day containing Ca 850mg, Vit D3 10mcg, Mg 300mg, Zn 10mg, Ma 0.5mg, Se 50mcg Bo 0.6mg. I was taking my Osteocare with my Pred & Omeprazole, but after reading the great advice on the forum I take them at opposite ends of the day now. Also the Osteocare now taken at night seems to have stopped the odd night cramps I was getting. Yippee!! I’ve now graduated to the Osteocare Plus which gives me another 10mcg of D3, Soy isoflavones 100mg, DHA 175mg & EPA 35mg & Vit C 100mg. I eat 1 tin of salmon with bones twice a week, drink 1/2 pint of s/skimmed milk a day, minimum 100gms active yoghurt a day, eggs, cheese, fish, chicken, red meat only once a week, loads of fresh fruit & veg, 1 serving whole grains a day (rice,lentils,bread that type of thing), a couple of handfuls of unsalted nuts & dried fruit a day, max 3 cups tea/coffee a day, herbal teas, water, occasional smoothie/fruit & or veg drink. Plus I’m not a saint, so a couple of large glasses of wine or fizz when I go out or at the weekend - might have had a bit more at Ascot on Saturday. Well, it would have been rude not to 🤪. Really don’t want to start on AA (not that one 😜) bisphosphonates unless really have to, again based on what I’ve read on the forum.
Does this regime sound ok to you guys/girls? I have thought of asking GP if I can switch to Ranitidine rather than PPI Omeprazole after reading the info about preventing absorption of calcium. As Ranitidine is taken 3 times a day, I could take the Osteocare with my evening meal, so well away from the Pred and then take last dose of Ranitidine at bed time. I could probably get away with not taking the middle of the day dose of Ranitidine as well, but I’ll see how I go swapping from the Omeprazole first. Again, thoughts welcome.
Exercise wise, I average 2.5 - 3 miles walking with dog per day, but I do have to watch the spoons, as I definitely don’t have the energy levels I used to have before PMR or early bouncing off the walls Pred dose. Really not sure how much to push myself yet, and believe me, I can push so again all advice appreciated.
Look forward to all wise friends advice. Thank you