I wrote 2 weeks ago stating that after 2 months of reducing from 80 mg t0 30 mg I was now experiencing pressure on the right side of my head. Your replies told me that my U.S. Dr. had reduced the amount of prednisone way too fast and the symptoms were returning. I discussed this with him and told him that I had increased again to 40 mg which was fine before. He said that was correct but only to stay at 40 for 2 weeks. The symptoms are still there after 2 weeks and I intend to stay at 40 longer. Should these symptoms have disappeared by now? I hesitate to go back even higher, and he has now told me I probably should go according to how I am feeling. This thing is so rare over here that the Drs. know little about it. I feel very alone in this, and appreciate any help you can give me.I am afraid that I may still go blind, have you ever known this happen when a patient is on prednisone? It could just be that I am causing tension through worrying about that.! Thank you, Delia.
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