Second appointment today to educate my Dr in the trials and tribulations of PMR using the Parker Modules.
The surgery called me yesterday to say my Dr was not available would I see another one. Bearing in mind it was this Dr who said its best if I stick with the same person for continuity. No problem I said (we are in the early stages of negotiation). It as an amazing reason why the Dr wasnt going to be there but I wont go in to detail. So I saw different Dr and
I explained I had a flare up and that I was on 20mg Pred to manage it. He tried to interupt to say you should only go up in 1s til you get the right level. If he had read the notes first he would have seen the discussion I had 4 weeks ago with my trainee at the time of the flare up. I interjected to correct him with the course of action we had agreed on and to explain why I was here. I then went on to say how it was going to be, with the agreed tapering off plan and the to timescales to get to 10mg. I only want another prescription for Pred to take me through to my next appointment when I will have a blood test and an assessment of where I am at. Couldn’t find the last one I had in March so he checked last October’s. At this point he was staring at me with a slight tick developing over his right eye. He asked to do my blood pressure as I am at risk of Diabetes as well as high blood pressure. I said its the plague of steroids. I was only 10st when this started. (I wasnt but he didnt check to see anyway I was just checking to see he was actively listening to me). Then my hip needed replacing due to arthritis and the additional damage done by steroids. I was house bound for a year waiting for an operation. I am in Physio now to get strong enough to move more but the fatigue and muscle pain is a barrier. Not to mention my mental state due to not being able to sleep as another side effect of steroids. I lost my job and all my friends to become a day time TV addict. I have hardly seen my grandkids for the last 18 months either because I cant cope with them. I feel like a recluse. On top of all that I am enormous!! You should try walking a mile in my shoes after being so active and never been off sick in 40 years of working. Its really hard.
So he asks when do I take the steroids? 6am in the morning why? Because when you take them at night it stops you sleeping. I know that? Your adrenal glands kick in first thing to get you out of bed and ready for the day? Mine dont as I have PMR and the steroids do that for me so I take them in the morning like I was told to. Well I wont prescribe sleeping tables as they are addictive. Good I dont want anymore drugs its only about another 3 years till the PMR might go away. I can sleep after then. Now can you take off those three things on prescription that are pointless, mainly the paracetamol as it doesnt touch arthritis pain and I need a new sick note for DWP too. In my head I was saying its ok I can get most things I need off the Dark Web but he may emerge from his state if indifference and actually hear me so I didnt take that chance.
My time was up now as he was ushering me towards the door putting the script and sick note in my hands. I think there may be some forethought before engaging with me the next time. He is not a bad Dr just too busy and thinks we gain the font of all our knowledge from Google not personal experience or focus groups and forums. I do appreciate 7 years training and how ever many years practice Dr have to do but we are all different and need treating accordingly. Just to be heard is medicine in itself.
4 weeks till my next appointment. Hopefully a herd of Wildebest will not be rampaging through my Dr's village and he will be able to make it to the surgery to continue our training sessions.