Today's the day!: We don't know whether the teddy... - PMRGCAuk

PMRGCAuk
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Today's the day!

Polywotsit
PolywotsitPMRGCAuk team member
11 Replies

We don't know whether the teddy bears are having their picnic, but the NICE guidance for the use of tocilizumab (Roactemra) are published this morning on the NICE website.

nice.org.uk/guidance/TA518

Criteria are tight, as we expected, but it's a start.

11 Replies
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DorsetLady
DorsetLadyPMRGCAuk volunteer

Good. Well done to you and all involved in making this happen.

3 likes
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joat

Very interesting reading. Thank you.

1 like
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CT-5012

Thank you to all who helped to make this happen. Gold stars 🌟🤩💐

1 like
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SheffieldJane

Thank you for this welcome news and all the charity’s efforts to make this option a reality for GCA sufferers.

I bet Mark was wondering where his teddy had sloped off too.😀

1 like
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Hev1964

Can I ask if this is for England only Kate? I read this on another forum/fb Page. My own rheumatologist (in Scotland) has spoken to me about trying it so I was surprised to read it hadn’t been approved for Scotland! Could you confirm this - or otherwise please? Thanks x

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PMRpro
PMRproModerator
in reply to Hev1964

It is possible it is still available on special funding requests in Scotland - as it was in England previously.

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Hev1964
Hev1964
in reply to PMRpro

Ah maybe that’s what my Rheumatologist meant then, I was wondering after I saw Kate’s post and read it was England only. He maybe knows he could get it then. Many thanks x

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PMRpro
PMRproModerator
in reply to Hev1964

Or he isn't totally up-to-date and they may have put a moratorium on it until the approval process is completed.

1 like
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Polywotsit
PolywotsitPMRGCAuk team member

My understanding is that there has to be a separate ruling for Scotland because the health service authorities are different, but that it should follow on from this one.

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Hev1964
Hev1964
in reply to Polywotsit

Ah ok thank you, that sounds better than having to start from scratch for the Scottish folk amongst us - hopefully they won’t have to wait too long. Thank you for reply. X

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Jackoh

Thank you for posting this and all the hard effort that went into making this possible.

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