On New Year's Eve I bought myself a walking stick.
My oh 'so full of myself' achievement of 2mg Pred per day in mid December had flared into agonizing carpel tunnel syndrome and bursitis in my left knee.
It was then that I met you wonderful fellow sufferers and your forum, so armed with developing self confidence and lots of knowledge aquired here I set about taking control of my viscious little monster.
Within a few days my rheumy injected cortisone into the offending knee and doubled my pred to 4mg. Within a two weeks the stick developed a new use.... accessing items on the top shelf in the supermarket, and now lives in a dusty corner of my sitting room.
Meanwhile I stuck (in agony) with the 4mg dose until the nerve conduction tests were done then followed PMRpro's advice to add 5mg to the dose at which I flared (7mg). This kept me comfortable until surgery on 19th Feb. That day and the two following I took 8mg then reduced quickly 71/2 4 days then 7 1 week then 61/2 two weeks, then 6mg. My surgeon had suggested I get down to 5mg as soon as possible and stay there for three months. A miserable week on 6mg and my daughter was begging me to go back up to 61/2, which is where I am now.
At my 2 week post op wrist check with GP I requested a bone density scan as I had been on pred for over a year. I had this done on Thursday and found that I have Osteopenia in my left hip, rest of me fine. They also found three degenerated discs in my lumber spine and signs of Facet joint osteoarthritis. Could this explain why I can't walk far ?
To crown this, yesterday I had my routine blood test prior to a control visit with my GP on Tuesday and find that my CRP has shot up higher than when I was first diagnosed (CRP 25) and I am still taking 61/2mg pred daily.
So me and the Pred medicated dog (now on 20mg daily, and tramadol 100mg after having ears cleaned and examined under anaesthetic, and enjoying an elimination diet of fish and potatoes) plan to hunker down behind the sofa until the Joyeuse Fete de Paques has passed and the PMR treadmill resumes.
....If I already feel utterly rough an easter egg can't harm,... or a drop of wine, ...some oysters ....café Leigeoise.... etc ......etc .....
Wishing everyone a peaceful, painfree and contented Easter.